Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde

Detalhes bibliográficos
Ano de defesa: 2014
Autor(a) principal: Sousa, Eulange de lattes
Orientador(a): Medeiros, Marcelo lattes
Banca de defesa: Medeiros, Marcelo, Silva, Maria Sebastiana, Bezerra, Ana Lúcia Queiroz, Valdez, Diane, Pinheiro, Veralucia
Tipo de documento: Tese
Tipo de acesso: Acesso aberto
Idioma: por
Instituição de defesa: Universidade Federal de Goiás
Programa de Pós-Graduação: Programa de Pós-graduação em Ciências da Saúde (FM)
Departamento: Faculdade de Medicina - FM (RG)
País: Brasil
Palavras-chave em Português:
Palavras-chave em Inglês:
Área do conhecimento CNPq:
Link de acesso: http://repositorio.bc.ufg.br/tede/handle/tede/5374
Resumo: Sickle cell anemia is an inherited disease considered a public health problem in Brazil. In Brazil, it is estimated that there are more than 2 million people affected by some form of this anemia, with 3.500 new cases occurring every year. This dissertation aims to understand the meanings present in the relations established between children and adolescents with sickle cell anemia and professionals within the health services. The methodological choice of this study was the Social Strategic Qualitative Research and it took place at a Teaching Hospital. Data were collected through semi-structured interviews with 3 children, 5 adolescents and 9 health professionals. Data were analyzed through the content analysis technique. From the interviews with children and adolescents, the following categories emerged: the disease, the professionals, and the treatment in other services. From the interviews with health professionals, the following categories emerged: child, adolescent, mother-family, professionals from other services, the disease, and what to do. The research conducted indicated that it is necessary to engage children and adolescents in decisions related to their health-disease process. It also indicated that, in order to achieve it, the health professionals training have to include elements that enable professionals to consider children and adolescents as protagonists in their healthdisease process. In addition, it demonstrated the occurrence of institutional violence in the health treatment that patients with sickle cell anemia receive, as they have their autonomy, their subjectivity and their speech prevented and annulled.
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spelling Medeiros, Marcelohttp://lattes.cnpq.br/3009722217245952Medeiros, MarceloSilva, Maria SebastianaBezerra, Ana Lúcia QueirozValdez, DianePinheiro, Veraluciahttp://lattes.cnpq.br/1259822440061325Sousa, Eulange de2016-03-24T11:23:13Z2014-08-29SOUSA, E. Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde. 2014. 131 f. Tese (Doutorado em Ciências da Saúde) - Universidade Federal de Goiás, Goiânia, 2014.http://repositorio.bc.ufg.br/tede/handle/tede/5374Sickle cell anemia is an inherited disease considered a public health problem in Brazil. In Brazil, it is estimated that there are more than 2 million people affected by some form of this anemia, with 3.500 new cases occurring every year. This dissertation aims to understand the meanings present in the relations established between children and adolescents with sickle cell anemia and professionals within the health services. The methodological choice of this study was the Social Strategic Qualitative Research and it took place at a Teaching Hospital. Data were collected through semi-structured interviews with 3 children, 5 adolescents and 9 health professionals. Data were analyzed through the content analysis technique. From the interviews with children and adolescents, the following categories emerged: the disease, the professionals, and the treatment in other services. From the interviews with health professionals, the following categories emerged: child, adolescent, mother-family, professionals from other services, the disease, and what to do. The research conducted indicated that it is necessary to engage children and adolescents in decisions related to their health-disease process. It also indicated that, in order to achieve it, the health professionals training have to include elements that enable professionals to consider children and adolescents as protagonists in their healthdisease process. In addition, it demonstrated the occurrence of institutional violence in the health treatment that patients with sickle cell anemia receive, as they have their autonomy, their subjectivity and their speech prevented and annulled.A Anemia falciforme é uma doença hereditária considerada um problema de saúde pública no Brasil. Estima-se que existem, no Brasil, mais de 2 milhões de pessoas afetadas por alguma forma desta anemia, com uma ocorrência de 3.500 novos caso por ano. Este trabalho tem por objetivo compreender os significados presentes nas relações estabelecidas entre as crianças e adolescentes portadores de anemia falciforme e os profissionais no âmbito dos serviços de saúde. Esta pesquisa foi realizada tendo como opção metodológica a Pesquisa Social Estratégica de abordagem qualitativa, e como local de estudo optou-se por um hospital de ensino. Os dados foram obtidos por meio de entrevistas semiestruturadas com três crianças, cinco adolescentes e nove profissionais de saúde. Os dados foram analisados pela técnica de análise de conteúdo. A partir das entrevistas com as crianças e adolescentes, emergiram as seguintes categorias: doença, os profissionais e o atendimento em outros serviços. Das entrevistas com os profissionais, emergiram as categorias: criança, adolescente, mãe–família, profissionais de outros serviços, a doença e o que fazer. O estudo realizado indicou que é necessário envolver as crianças e adolescentes nas decisões relativas a seu processo saúde-doença e que a formação de profissionais de saúde deve incluir elementos que os instrumentalizem no sentido de considerar crianças e adolescentes como protagonistas em seu processo saúde-doença. Indicou também a ocorrência de violência institucional no atendimento que os portadores de anemia falciforme recebem, pois têm sua autonomia, sua subjetividade e sua fala impedidas e anuladas.Submitted by Cláudia Bueno (claudiamoura18@gmail.com) on 2016-03-23T19:39:33Z No. of bitstreams: 2 Tese - Eulange de Sousa - 2014.pdf: 1842524 bytes, checksum: a5108c2cc373e40dfb2dc3c72797efc9 (MD5) license_rdf: 23148 bytes, checksum: 9da0b6dfac957114c6a7714714b86306 (MD5)Approved for entry into archive by Luciana Ferreira (lucgeral@gmail.com) on 2016-03-24T11:23:13Z (GMT) No. of bitstreams: 2 Tese - Eulange de Sousa - 2014.pdf: 1842524 bytes, checksum: a5108c2cc373e40dfb2dc3c72797efc9 (MD5) license_rdf: 23148 bytes, checksum: 9da0b6dfac957114c6a7714714b86306 (MD5)Made available in DSpace on 2016-03-24T11:23:13Z (GMT). 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dc.title.por.fl_str_mv Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
title Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
spellingShingle Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
Sousa, Eulange de
Anemia falciforme
Crianças
Anemia falciforme
Adolescentes
Serviços de saúde
Sickle cell anemia
Children
Sickle cell anemia
Adolescents
Health services
CIENCIAS DA SAUDE
title_short Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
title_full Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
title_fullStr Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
title_full_unstemmed Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
title_sort Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
author Sousa, Eulange de
author_facet Sousa, Eulange de
author_role author
dc.contributor.advisor1.fl_str_mv Medeiros, Marcelo
dc.contributor.advisor1Lattes.fl_str_mv http://lattes.cnpq.br/3009722217245952
dc.contributor.referee1.fl_str_mv Medeiros, Marcelo
dc.contributor.referee2.fl_str_mv Silva, Maria Sebastiana
dc.contributor.referee3.fl_str_mv Bezerra, Ana Lúcia Queiroz
dc.contributor.referee4.fl_str_mv Valdez, Diane
dc.contributor.referee5.fl_str_mv Pinheiro, Veralucia
dc.contributor.authorLattes.fl_str_mv http://lattes.cnpq.br/1259822440061325
dc.contributor.author.fl_str_mv Sousa, Eulange de
contributor_str_mv Medeiros, Marcelo
Medeiros, Marcelo
Silva, Maria Sebastiana
Bezerra, Ana Lúcia Queiroz
Valdez, Diane
Pinheiro, Veralucia
dc.subject.por.fl_str_mv Anemia falciforme
Crianças
Anemia falciforme
Adolescentes
Serviços de saúde
topic Anemia falciforme
Crianças
Anemia falciforme
Adolescentes
Serviços de saúde
Sickle cell anemia
Children
Sickle cell anemia
Adolescents
Health services
CIENCIAS DA SAUDE
dc.subject.eng.fl_str_mv Sickle cell anemia
Children
Sickle cell anemia
Adolescents
Health services
dc.subject.cnpq.fl_str_mv CIENCIAS DA SAUDE
description Sickle cell anemia is an inherited disease considered a public health problem in Brazil. In Brazil, it is estimated that there are more than 2 million people affected by some form of this anemia, with 3.500 new cases occurring every year. This dissertation aims to understand the meanings present in the relations established between children and adolescents with sickle cell anemia and professionals within the health services. The methodological choice of this study was the Social Strategic Qualitative Research and it took place at a Teaching Hospital. Data were collected through semi-structured interviews with 3 children, 5 adolescents and 9 health professionals. Data were analyzed through the content analysis technique. From the interviews with children and adolescents, the following categories emerged: the disease, the professionals, and the treatment in other services. From the interviews with health professionals, the following categories emerged: child, adolescent, mother-family, professionals from other services, the disease, and what to do. The research conducted indicated that it is necessary to engage children and adolescents in decisions related to their health-disease process. It also indicated that, in order to achieve it, the health professionals training have to include elements that enable professionals to consider children and adolescents as protagonists in their healthdisease process. In addition, it demonstrated the occurrence of institutional violence in the health treatment that patients with sickle cell anemia receive, as they have their autonomy, their subjectivity and their speech prevented and annulled.
publishDate 2014
dc.date.issued.fl_str_mv 2014-08-29
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identifier_str_mv SOUSA, E. Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde. 2014. 131 f. Tese (Doutorado em Ciências da Saúde) - Universidade Federal de Goiás, Goiânia, 2014.
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