Autismo em movimento : a mobilização da família no reconhecimento do autismo

Detalhes bibliográficos
Ano de defesa: 2022
Autor(a) principal: Bianca Retes Carvalho
Orientador(a): Não Informado pela instituição
Banca de defesa: Não Informado pela instituição
Tipo de documento: Dissertação
Tipo de acesso: Acesso aberto
Idioma: por
Instituição de defesa: Universidade Federal de Minas Gerais
Programa de Pós-Graduação: Não Informado pela instituição
Departamento: Não Informado pela instituição
País: Não Informado pela instituição
Palavras-chave em Português:
Link de acesso: https://hdl.handle.net/1843/46873
Resumo: This dissertation proposes to analyze the care relations and political actions of family members of people on the autistic spectrum in the social and political recognition of autism and the realization of rights and public policies. The research was carried out through an ethnography in different networks of care and action in the city of Belo Horizonte/MG; among them, associations, municipal spaces and social networks. Interviews were also conducted with family members, autistic people and public agents; as well as participation in events and documentary analysis of rights and public policies related to autism. The trajectories of mothers and fathers of autistic individuals show how disability, kinship, care and the State are articulated in complex ways. Ethnography, therefore, based on theoretical discussions of kinship, social movements and care, makes it possible to reflect on how family relationships constitute and are constituted in the multiple meanings attributed to autism. Finally, this work points to the limits and possibilities of care practices that also conform to political practices, constituting democratic and participatory processes, in which the subjects’ experiences gain centrality to the demand for a more inclusive society.
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spelling 2022-11-03T17:34:55Z2025-09-08T23:17:36Z2022-11-03T17:34:55Z2022-04-26https://hdl.handle.net/1843/46873This dissertation proposes to analyze the care relations and political actions of family members of people on the autistic spectrum in the social and political recognition of autism and the realization of rights and public policies. The research was carried out through an ethnography in different networks of care and action in the city of Belo Horizonte/MG; among them, associations, municipal spaces and social networks. Interviews were also conducted with family members, autistic people and public agents; as well as participation in events and documentary analysis of rights and public policies related to autism. The trajectories of mothers and fathers of autistic individuals show how disability, kinship, care and the State are articulated in complex ways. Ethnography, therefore, based on theoretical discussions of kinship, social movements and care, makes it possible to reflect on how family relationships constitute and are constituted in the multiple meanings attributed to autism. Finally, this work points to the limits and possibilities of care practices that also conform to political practices, constituting democratic and participatory processes, in which the subjects’ experiences gain centrality to the demand for a more inclusive society.CAPES - Coordenação de Aperfeiçoamento de Pessoal de Nível SuperiorporUniversidade Federal de Minas GeraisAutismoDeficiênciaParentescoCuidadoMovimento socialAntropologia - TesesAutismo - TesesParentesco - TesesCuidado - TesesAutismo em movimento : a mobilização da família no reconhecimento do autismoAutism in movement : family's mobilization in the recognition of autisminfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisBianca Retes Carvalhoinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFMGinstname:Universidade Federal de Minas Gerais (UFMG)instacron:UFMGhttp://lattes.cnpq.br/8728784626998099Sabrina Deise Finamorihttp://lattes.cnpq.br/6781651699042439Leandro de OliveiraHelena Moura FietzÉrica Renata de SouzaEsta dissertação tem como objetivo analisar as relações de cuidados e atuações políticas de familiares de pessoas no espectro autista no reconhecimento social e político do autismo e na efetivação de direitos e políticas públicas. A pesquisa foi realizada através de uma etnografia em diferentes redes de acolhimento e atuação na cidade de Belo Horizonte/MG; dentre elas, associações, espaços municipais e redes sociais. Também foram feitas entrevistas com familiares, autistas e agentes públicos, assim como a participação em eventos e análises documentais de direitos e políticas públicas relativos ao autismo. As trajetórias das mães e pais de autistas evidenciam como deficiência, parentesco, cuidado e Estado são articulados de formas complexas. A etnografia, portanto, fundamentada em discussões teóricas de parentesco, movimentos sociais e cuidado, possibilita refletir como as relações familiares constituem e são constituídas nos múltiplos sentidos atribuídos ao autismo. Por fim, este trabalho aponta para os limites e possibilidades das práticas de cuidado que também se conformam como práticas políticas, constituindo processos democráticos e participativos, nos quais as experiências dos sujeitos ganham centralidade na reivindicação de uma sociedade mais inclusiva.https://orcid.org/0000-0002-0106-0422BrasilFAF - DEPARTAMENTO DE ANTROPOLOGIA E ARQUEOLOGIAPrograma de Pós-Graduação em AntropologiaUFMGORIGINALAutismo em movimento.pdfapplication/pdf2192664https://repositorio.ufmg.br//bitstreams/af692ce3-3d46-4c77-bb6f-a4277b5406cb/download21d381a8423e01d09479d9295d0caf67MD51trueAnonymousREADLICENSElicense.txttext/plain2118https://repositorio.ufmg.br//bitstreams/fcf2b7ae-4dd0-4fb2-9694-b7f7884fd88e/downloadcda590c95a0b51b4d15f60c9642ca272MD52falseAnonymousREAD1843/468732025-09-08 20:17:36.696open.accessoai:repositorio.ufmg.br:1843/46873https://repositorio.ufmg.br/Repositório InstitucionalPUBhttps://repositorio.ufmg.br/oairepositorio@ufmg.bropendoar:2025-09-08T23:17:36Repositório Institucional da UFMG - Universidade Federal de Minas Gerais (UFMG)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
dc.title.none.fl_str_mv Autismo em movimento : a mobilização da família no reconhecimento do autismo
dc.title.alternative.none.fl_str_mv Autism in movement : family's mobilization in the recognition of autism
title Autismo em movimento : a mobilização da família no reconhecimento do autismo
spellingShingle Autismo em movimento : a mobilização da família no reconhecimento do autismo
Bianca Retes Carvalho
Antropologia - Teses
Autismo - Teses
Parentesco - Teses
Cuidado - Teses
Autismo
Deficiência
Parentesco
Cuidado
Movimento social
title_short Autismo em movimento : a mobilização da família no reconhecimento do autismo
title_full Autismo em movimento : a mobilização da família no reconhecimento do autismo
title_fullStr Autismo em movimento : a mobilização da família no reconhecimento do autismo
title_full_unstemmed Autismo em movimento : a mobilização da família no reconhecimento do autismo
title_sort Autismo em movimento : a mobilização da família no reconhecimento do autismo
author Bianca Retes Carvalho
author_facet Bianca Retes Carvalho
author_role author
dc.contributor.author.fl_str_mv Bianca Retes Carvalho
dc.subject.por.fl_str_mv Antropologia - Teses
Autismo - Teses
Parentesco - Teses
Cuidado - Teses
topic Antropologia - Teses
Autismo - Teses
Parentesco - Teses
Cuidado - Teses
Autismo
Deficiência
Parentesco
Cuidado
Movimento social
dc.subject.other.none.fl_str_mv Autismo
Deficiência
Parentesco
Cuidado
Movimento social
description This dissertation proposes to analyze the care relations and political actions of family members of people on the autistic spectrum in the social and political recognition of autism and the realization of rights and public policies. The research was carried out through an ethnography in different networks of care and action in the city of Belo Horizonte/MG; among them, associations, municipal spaces and social networks. Interviews were also conducted with family members, autistic people and public agents; as well as participation in events and documentary analysis of rights and public policies related to autism. The trajectories of mothers and fathers of autistic individuals show how disability, kinship, care and the State are articulated in complex ways. Ethnography, therefore, based on theoretical discussions of kinship, social movements and care, makes it possible to reflect on how family relationships constitute and are constituted in the multiple meanings attributed to autism. Finally, this work points to the limits and possibilities of care practices that also conform to political practices, constituting democratic and participatory processes, in which the subjects’ experiences gain centrality to the demand for a more inclusive society.
publishDate 2022
dc.date.accessioned.fl_str_mv 2022-11-03T17:34:55Z
2025-09-08T23:17:36Z
dc.date.available.fl_str_mv 2022-11-03T17:34:55Z
dc.date.issued.fl_str_mv 2022-04-26
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dc.publisher.none.fl_str_mv Universidade Federal de Minas Gerais
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