Adoecer e morrer na juventude : experiência familiar de cuidado

Detalhes bibliográficos
Ano de defesa: 2018
Autor(a) principal: Bezerra, Maria Simone Mendes
Orientador(a): Não Informado pela instituição
Banca de defesa: Não Informado pela instituição
Tipo de documento: Dissertação
Tipo de acesso: Acesso aberto
Idioma: por
Instituição de defesa: Universidade Federal de Mato Grosso
Brasil
Faculdade de Enfermagem (FAEN)
UFMT CUC - Cuiabá
Programa de Pós-Graduação em Enfermagem
Programa de Pós-Graduação: Não Informado pela instituição
Departamento: Não Informado pela instituição
País: Não Informado pela instituição
Palavras-chave em Português:
Link de acesso: http://ri.ufmt.br/handle/1/3119
Resumo: Evaluative research (opinion nº 951,101/CEP-HUJM/2015) to which this study is bound has the intention to study families facing a situation of chronic illness. The needs of the familiar sick concern, modeled according to the nature and duration of the disease, through family resources and support from professionals and health services. In this study was considered the illness and death by cancer on youth in which the situation of the family becomes more complex. Objective: understand the family experience to watch the young man with leukemia outside the possibilities of cure. Methodology: qualitative research of comprehensive base that is configured as a "study of situation". The context of life considered in this study is the experienced by the family of Star, twenty years diagnosed with Acute Lymphoblastic Leukemia, outside of the therapeutic possibilities of cure. In collecting the data was through the History of Life operationalized by the in-depth interview and observation, that composed the research journal. The thorough reading of the research journal allowed the classification of narratives in three themes: Experience of the chronic illness for young cancer and the constellation of care woven by the family: The Allegory of the constellation we understand the (re) family organization through the movement and the care that generates family togetherness around the Young; Spirituality as a way of life and coping strategy of illness and finitude, where spirituality and religiosity arise as a way of life and reaffirming front of illness and finitude; Death as natural event: young's experience with cancer: Understanding the experience of death and dying of young man with cancer, has shown that this process can be perceived as something that generates personal growth by providing an invaluable wealth of learning. Final considerations: We believe that this study urges health professionals to seek a form of care that enhances the subjectivity of each person, and the only way how to experience their conflicts in the face of serious illness and death, because we will only be able to take care of the other with mastery from the moment perceive beyond the preestablished techniques.
id UFMT_5b7854f26c20957f0bfbf35bcf9bed4a
oai_identifier_str oai:localhost:1/3119
network_acronym_str UFMT
network_name_str Repositório Institucional da UFMT
repository_id_str
spelling Adoecer e morrer na juventude : experiência familiar de cuidadoCuidado familiarAdolescenteCâncerCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMFamilyAdolescent careCancerEvaluative research (opinion nº 951,101/CEP-HUJM/2015) to which this study is bound has the intention to study families facing a situation of chronic illness. The needs of the familiar sick concern, modeled according to the nature and duration of the disease, through family resources and support from professionals and health services. In this study was considered the illness and death by cancer on youth in which the situation of the family becomes more complex. Objective: understand the family experience to watch the young man with leukemia outside the possibilities of cure. Methodology: qualitative research of comprehensive base that is configured as a "study of situation". The context of life considered in this study is the experienced by the family of Star, twenty years diagnosed with Acute Lymphoblastic Leukemia, outside of the therapeutic possibilities of cure. In collecting the data was through the History of Life operationalized by the in-depth interview and observation, that composed the research journal. The thorough reading of the research journal allowed the classification of narratives in three themes: Experience of the chronic illness for young cancer and the constellation of care woven by the family: The Allegory of the constellation we understand the (re) family organization through the movement and the care that generates family togetherness around the Young; Spirituality as a way of life and coping strategy of illness and finitude, where spirituality and religiosity arise as a way of life and reaffirming front of illness and finitude; Death as natural event: young's experience with cancer: Understanding the experience of death and dying of young man with cancer, has shown that this process can be perceived as something that generates personal growth by providing an invaluable wealth of learning. Final considerations: We believe that this study urges health professionals to seek a form of care that enhances the subjectivity of each person, and the only way how to experience their conflicts in the face of serious illness and death, because we will only be able to take care of the other with mastery from the moment perceive beyond the preestablished techniques.CAPESA pesquisa matricial (parecer nº 951.101/CEP–HUJM/2015) à qual esse estudo está vinculado possui a intenção de estudar famílias que enfrentam uma situação de adoecimento crônico. As necessidades do familiar adoecido requerem cuidados, modelados de acordo com a natureza e duração da enfermidade, através dos recursos familiares e suporte dos profissionais e serviços de saúde. Nesse estudo foi considerado o adoecimento e morte por câncer na juventude na qual a situação da família se torna mais complexa. Objetivo: Compreender a experiência familiar de cuidado a jovem com leucemia fora das possibilidades de cura. Metodologia: Pesquisa de abordagem qualitativa de base compreensiva que se configura como um “estudo de situação”. O contexto de vida considerado neste estudo é o vivenciado pela família de Estrela, jovem de vinte anos diagnosticada com Leucemia Linfoide aguda, fora das possibilidades terapêuticas de cura. Na recolha dos dados foi por meio da História de Vida operacionalizada pela Entrevista em Profundidade e pela Observação, que compuseram o Diário de Pesquisa. A leitura minuciosa do Diário de Pesquisa permitiu a classificação das narrativas em três temas: Experiência do adoecer crônico por câncer de jovem e a constelação do cuidado tecido pela família: a elaboração da alegoria da constelação nos levou a entender a (re)organização familiar por meio do movimento e das relações de cuidado que gera união familiar em torno da Jovem; Espiritualidade como modo de vida e estratégia de enfrentamento do adoecimento e finitude, onde a espiritualidade e religiosidade surgem como modo de vida e se reafirmando frente ao adoecimento e finitude; A morte como evento natural: experiência de jovem com câncer: A compreensão da experiência de morte e morrer de jovem com câncer, mostrou que esse processo pode ser percebido como algo que gera crescimento pessoal proporcionando uma riqueza inestimável de aprendizado. Considerações finais: Acreditamos que esse estudo impulsiona os profissionais de saúde a buscarem uma forma de cuidar que valorize a subjetividade de cada pessoa, e a maneira única como vivencia seus conflitos diante do adoecimento grave e morte, pois só conseguiremos cuidar do outro com maestria a partir do momento que o percebemos para além das técnicas pré-estabelecidas.Universidade Federal de Mato GrossoBrasilFaculdade de Enfermagem (FAEN)UFMT CUC - CuiabáPrograma de Pós-Graduação em EnfermagemSouza, Solange Pires Salomé dehttp://lattes.cnpq.br/4348270588812141Souza, Solange Pires Salomé de161.717.481-53http://lattes.cnpq.br/4348270588812141Barbosa, Maria Aparecida Rodrigues da Silva474.704.021-87http://lattes.cnpq.br/5567504084553407161.717.481-53Corrêa, Áurea Christina de Paula265.943.661-49http://lattes.cnpq.br/6965131143622313Bezerra, Maria Simone Mendes2021-12-14T14:53:35Z2018-02-212021-12-14T14:53:35Z2018-02-08info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisBEZERRA, Maria Simone Mendes. Adoecer e morrer na juventude: experiência familiar de cuidado. 2018. 117 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Mato Grosso, Faculdade de Enfermagem, Cuiabá, 2018.http://ri.ufmt.br/handle/1/3119porinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFMTinstname:Universidade Federal de Mato Grosso (UFMT)instacron:UFMT2021-12-19T06:02:46Zoai:localhost:1/3119Repositório InstitucionalPUBhttp://ri.ufmt.br/oai/requestjordanbiblio@gmail.comopendoar:2021-12-19T06:02:46Repositório Institucional da UFMT - Universidade Federal de Mato Grosso (UFMT)false
dc.title.none.fl_str_mv Adoecer e morrer na juventude : experiência familiar de cuidado
title Adoecer e morrer na juventude : experiência familiar de cuidado
spellingShingle Adoecer e morrer na juventude : experiência familiar de cuidado
Bezerra, Maria Simone Mendes
Cuidado familiar
Adolescente
Câncer
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
Family
Adolescent care
Cancer
title_short Adoecer e morrer na juventude : experiência familiar de cuidado
title_full Adoecer e morrer na juventude : experiência familiar de cuidado
title_fullStr Adoecer e morrer na juventude : experiência familiar de cuidado
title_full_unstemmed Adoecer e morrer na juventude : experiência familiar de cuidado
title_sort Adoecer e morrer na juventude : experiência familiar de cuidado
author Bezerra, Maria Simone Mendes
author_facet Bezerra, Maria Simone Mendes
author_role author
dc.contributor.none.fl_str_mv Souza, Solange Pires Salomé de
http://lattes.cnpq.br/4348270588812141
Souza, Solange Pires Salomé de
161.717.481-53
http://lattes.cnpq.br/4348270588812141
Barbosa, Maria Aparecida Rodrigues da Silva
474.704.021-87
http://lattes.cnpq.br/5567504084553407
161.717.481-53
Corrêa, Áurea Christina de Paula
265.943.661-49
http://lattes.cnpq.br/6965131143622313
dc.contributor.author.fl_str_mv Bezerra, Maria Simone Mendes
dc.subject.por.fl_str_mv Cuidado familiar
Adolescente
Câncer
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
Family
Adolescent care
Cancer
topic Cuidado familiar
Adolescente
Câncer
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
Family
Adolescent care
Cancer
description Evaluative research (opinion nº 951,101/CEP-HUJM/2015) to which this study is bound has the intention to study families facing a situation of chronic illness. The needs of the familiar sick concern, modeled according to the nature and duration of the disease, through family resources and support from professionals and health services. In this study was considered the illness and death by cancer on youth in which the situation of the family becomes more complex. Objective: understand the family experience to watch the young man with leukemia outside the possibilities of cure. Methodology: qualitative research of comprehensive base that is configured as a "study of situation". The context of life considered in this study is the experienced by the family of Star, twenty years diagnosed with Acute Lymphoblastic Leukemia, outside of the therapeutic possibilities of cure. In collecting the data was through the History of Life operationalized by the in-depth interview and observation, that composed the research journal. The thorough reading of the research journal allowed the classification of narratives in three themes: Experience of the chronic illness for young cancer and the constellation of care woven by the family: The Allegory of the constellation we understand the (re) family organization through the movement and the care that generates family togetherness around the Young; Spirituality as a way of life and coping strategy of illness and finitude, where spirituality and religiosity arise as a way of life and reaffirming front of illness and finitude; Death as natural event: young's experience with cancer: Understanding the experience of death and dying of young man with cancer, has shown that this process can be perceived as something that generates personal growth by providing an invaluable wealth of learning. Final considerations: We believe that this study urges health professionals to seek a form of care that enhances the subjectivity of each person, and the only way how to experience their conflicts in the face of serious illness and death, because we will only be able to take care of the other with mastery from the moment perceive beyond the preestablished techniques.
publishDate 2018
dc.date.none.fl_str_mv 2018-02-21
2018-02-08
2021-12-14T14:53:35Z
2021-12-14T14:53:35Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/masterThesis
format masterThesis
status_str publishedVersion
dc.identifier.uri.fl_str_mv BEZERRA, Maria Simone Mendes. Adoecer e morrer na juventude: experiência familiar de cuidado. 2018. 117 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Mato Grosso, Faculdade de Enfermagem, Cuiabá, 2018.
http://ri.ufmt.br/handle/1/3119
identifier_str_mv BEZERRA, Maria Simone Mendes. Adoecer e morrer na juventude: experiência familiar de cuidado. 2018. 117 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Mato Grosso, Faculdade de Enfermagem, Cuiabá, 2018.
url http://ri.ufmt.br/handle/1/3119
dc.language.iso.fl_str_mv por
language por
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv Universidade Federal de Mato Grosso
Brasil
Faculdade de Enfermagem (FAEN)
UFMT CUC - Cuiabá
Programa de Pós-Graduação em Enfermagem
publisher.none.fl_str_mv Universidade Federal de Mato Grosso
Brasil
Faculdade de Enfermagem (FAEN)
UFMT CUC - Cuiabá
Programa de Pós-Graduação em Enfermagem
dc.source.none.fl_str_mv reponame:Repositório Institucional da UFMT
instname:Universidade Federal de Mato Grosso (UFMT)
instacron:UFMT
instname_str Universidade Federal de Mato Grosso (UFMT)
instacron_str UFMT
institution UFMT
reponame_str Repositório Institucional da UFMT
collection Repositório Institucional da UFMT
repository.name.fl_str_mv Repositório Institucional da UFMT - Universidade Federal de Mato Grosso (UFMT)
repository.mail.fl_str_mv jordanbiblio@gmail.com
_version_ 1804648576752549888