As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012
Ano de defesa: | 2014 |
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Autor(a) principal: | |
Orientador(a): | |
Banca de defesa: | |
Tipo de documento: | Tese |
Tipo de acesso: | Acesso aberto |
Idioma: | por |
Instituição de defesa: |
Pontifícia Universidade Católica de São Paulo
|
Programa de Pós-Graduação: |
Programa de Estudos Pós-Graduados em Serviço Social
|
Departamento: |
Serviço Social
|
País: |
BR
|
Palavras-chave em Português: | |
Palavras-chave em Inglês: | |
Área do conhecimento CNPq: | |
Link de acesso: | https://tede2.pucsp.br/handle/handle/17671 |
Resumo: | This thesis studies the experience of the process of foundation of a network of national and international Chagas disease associations that focuses on the effectiveness of the human right to health care. The general objective is to analyze the foundation and the development process of the national and international Chagas disease associations during the years of 1987 to 2012, culminated with the construction of a democratic full time network of assistance to the carrier of the disease that also aims at better life and health conditions to them. The guiding question of this thesis is: do the national and international Chagas disease associations, on their own and on networks, constitute a democratic strategy that enables the accomplishment of the right of access and the effectiveness of the assistance to the carriers of the disease and of better life and health conditions? The hypothesis is: the Chagas disease associations, as national and international networks - FINDECHAGAS -, are constituted by a democratic strategy as they enable an increasing awareness of the Chagas disease as a public health issue and gives the opportunity to its partners to participate actively and collectively aiming the achievement and effectiveness of the full time assistance to the disease and for better life and health conditions to its carriers. The main conceptual references handle associativism, democracy, citizenship, participation and social network approached by notorious authors of the Biological and Social Sciences field. From the methodological point of view, nature of the research is qualitative and includes documental, bibliographic and field researches. Ten testimonies of participants of the research were collected and they showed, along with the observer opinion of this researcher, that the experience of the process of foundation of a network of national and international Chagas disease associations is constituted by a democratic strategy, and it confirms the hypothesis first proposed. This outcome, despite the foundation/implement stage of the FINDECHAGAS, evidences, however, the need of strengthening the bounds, relations and articulation among the network in face of the challenges such as the increase and improvement of the quality of assistance in national and global levels to the carriers of the Chagas disease, considering, in this sense, the deepening democratic historic contexts of countries, in the present and in the future |
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Silva, Maria Lucia Carvalho daSilva, Maria Barbosa da2016-04-29T14:16:30Z2014-05-262014-03-10Silva, Maria Barbosa da. National and international associations of Chagas disease: a social network for the effectiveness of the right to health 1987/2012. 2014. 154 f. Tese (Doutorado em Serviço Social) - Pontifícia Universidade Católica de São Paulo, São Paulo, 2014.https://tede2.pucsp.br/handle/handle/17671This thesis studies the experience of the process of foundation of a network of national and international Chagas disease associations that focuses on the effectiveness of the human right to health care. The general objective is to analyze the foundation and the development process of the national and international Chagas disease associations during the years of 1987 to 2012, culminated with the construction of a democratic full time network of assistance to the carrier of the disease that also aims at better life and health conditions to them. The guiding question of this thesis is: do the national and international Chagas disease associations, on their own and on networks, constitute a democratic strategy that enables the accomplishment of the right of access and the effectiveness of the assistance to the carriers of the disease and of better life and health conditions? The hypothesis is: the Chagas disease associations, as national and international networks - FINDECHAGAS -, are constituted by a democratic strategy as they enable an increasing awareness of the Chagas disease as a public health issue and gives the opportunity to its partners to participate actively and collectively aiming the achievement and effectiveness of the full time assistance to the disease and for better life and health conditions to its carriers. The main conceptual references handle associativism, democracy, citizenship, participation and social network approached by notorious authors of the Biological and Social Sciences field. From the methodological point of view, nature of the research is qualitative and includes documental, bibliographic and field researches. Ten testimonies of participants of the research were collected and they showed, along with the observer opinion of this researcher, that the experience of the process of foundation of a network of national and international Chagas disease associations is constituted by a democratic strategy, and it confirms the hypothesis first proposed. This outcome, despite the foundation/implement stage of the FINDECHAGAS, evidences, however, the need of strengthening the bounds, relations and articulation among the network in face of the challenges such as the increase and improvement of the quality of assistance in national and global levels to the carriers of the Chagas disease, considering, in this sense, the deepening democratic historic contexts of countries, in the present and in the futureA presente tese tem como objeto o estudo da experiência do processo de construção de uma rede de associações nacionais e internacionais de doença de Chagas voltada para a efetividade do direito à saúde. O objetivo geral é analisar o processo de criação e desenvolvimento das associações nacionais e internacionais de doença de Chagas, no período de 1987 a 2012, culminado com a construção de uma rede de natureza democrática e de assistência integral a essa doença e a melhores condições de vida e saúde aos seus portadores. Definiu-se como pergunta norteadora: as associações de doença de Chagas nacionais e internacionais, por si próprias e em rede, constituem estratégia democrática para a concretização do direito de acesso e efetividade de assistência a essa doença e a melhores condições de vida e saúde de seus portadores? A hipótese formulada foi: as associações de doença de Chagas, enquanto rede nacional e internacional FINDECHAGAS constituem-se em uma estratégia democrática ao dar crescente visibilidade à doença de Chagas como um problema de saúde pública e oportuniza aos seus membros possibilidades de participação ativa e coletiva, com vistas à concretização e à efetividade de assistência integral a essa doença e às melhores condições de vida e saúde de seus portadores. Os referenciais conceituais centrais incidem sobre o associativismo, a democracia, a cidadania, a participação e a rede social, em autores notórios das Ciências Sociais e Saúde. Do ponto de vista metodológico, a pesquisa é de natureza qualitativa e compreende pesquisa documental, bibliográfica e de campo. Foram colhidos 10 relatos dos sujeitos participantes da pesquisa, cuja análise de conteúdo, paralelamente com a observação participante da pesquisadora, revelaram que a experiência em construção de uma rede das associações nacionais e internacionais da doença de Chagas - FINDECHAGAS - constitui-se em uma estratégia democrática, confirmando a hipótese levantada. Esse resultado, apesar da etapa de construção/implementação da FINDECHAGAS, evidencia, contudo, tanto a necessidade de crescente fortalecimento de vínculos, relações e articulação em rede da FINDECHAGAS, quanto os desafios para a ampliação e melhoria de qualidade de assistência aos doentes de Chagas nos níveis nacional e global, considerando, nesse sentido, os contextos históricos de aprofundamento democrático dos países, no presente e no futuroCoordenação de Aperfeiçoamento de Pessoal de Nível Superiorapplication/pdfhttp://tede2.pucsp.br/tede/retrieve/36648/Maria%20Barbosa%20da%20Silva.pdf.jpgporPontifícia Universidade Católica de São PauloPrograma de Estudos Pós-Graduados em Serviço SocialPUC-SPBRServiço SocialAssociativismoDireito à saúdeDoença de ChagasRede socialAssociativismHuman right to health careChagas diseaseSocial networkSocial WorkCNPQ::CIENCIAS SOCIAIS APLICADAS::SERVICO SOCIALAs associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012National and international associations of Chagas disease: a social network for the effectiveness of the right to health 1987/2012info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisinfo:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da PUC_SPinstname:Pontifícia Universidade Católica de São Paulo (PUC-SP)instacron:PUC_SPTEXTMaria Barbosa da Silva.pdf.txtMaria Barbosa da Silva.pdf.txtExtracted texttext/plain308585https://repositorio.pucsp.br/xmlui/bitstream/handle/17671/3/Maria%20Barbosa%20da%20Silva.pdf.txt50737df2b54de0931ed568177a91768dMD53ORIGINALMaria Barbosa da Silva.pdfapplication/pdf701138https://repositorio.pucsp.br/xmlui/bitstream/handle/17671/1/Maria%20Barbosa%20da%20Silva.pdf3d1e24fe815d26b2544dca4596ca0aeaMD51THUMBNAILMaria Barbosa da Silva.pdf.jpgMaria Barbosa da Silva.pdf.jpgGenerated Thumbnailimage/jpeg1943https://repositorio.pucsp.br/xmlui/bitstream/handle/17671/2/Maria%20Barbosa%20da%20Silva.pdf.jpgcc73c4c239a4c332d642ba1e7c7a9fb2MD52handle/176712022-04-28 01:55:55.03oai:repositorio.pucsp.br:handle/17671Biblioteca Digital de Teses e Dissertaçõeshttps://sapientia.pucsp.br/https://sapientia.pucsp.br/oai/requestbngkatende@pucsp.br||rapassi@pucsp.bropendoar:2022-04-28T04:55:55Biblioteca Digital de Teses e Dissertações da PUC_SP - Pontifícia Universidade Católica de São Paulo (PUC-SP)false |
dc.title.por.fl_str_mv |
As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012 |
dc.title.alternative.eng.fl_str_mv |
National and international associations of Chagas disease: a social network for the effectiveness of the right to health 1987/2012 |
title |
As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012 |
spellingShingle |
As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012 Silva, Maria Barbosa da Associativismo Direito à saúde Doença de Chagas Rede social Associativism Human right to health care Chagas disease Social network Social Work CNPQ::CIENCIAS SOCIAIS APLICADAS::SERVICO SOCIAL |
title_short |
As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012 |
title_full |
As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012 |
title_fullStr |
As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012 |
title_full_unstemmed |
As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012 |
title_sort |
As associações nacionais e internacionais de Doença de Chagas: uma rede social para a efetividade do direito à saúde - 1987/2012 |
author |
Silva, Maria Barbosa da |
author_facet |
Silva, Maria Barbosa da |
author_role |
author |
dc.contributor.advisor1.fl_str_mv |
Silva, Maria Lucia Carvalho da |
dc.contributor.author.fl_str_mv |
Silva, Maria Barbosa da |
contributor_str_mv |
Silva, Maria Lucia Carvalho da |
dc.subject.por.fl_str_mv |
Associativismo Direito à saúde Doença de Chagas Rede social |
topic |
Associativismo Direito à saúde Doença de Chagas Rede social Associativism Human right to health care Chagas disease Social network Social Work CNPQ::CIENCIAS SOCIAIS APLICADAS::SERVICO SOCIAL |
dc.subject.eng.fl_str_mv |
Associativism Human right to health care Chagas disease Social network Social Work |
dc.subject.cnpq.fl_str_mv |
CNPQ::CIENCIAS SOCIAIS APLICADAS::SERVICO SOCIAL |
description |
This thesis studies the experience of the process of foundation of a network of national and international Chagas disease associations that focuses on the effectiveness of the human right to health care. The general objective is to analyze the foundation and the development process of the national and international Chagas disease associations during the years of 1987 to 2012, culminated with the construction of a democratic full time network of assistance to the carrier of the disease that also aims at better life and health conditions to them. The guiding question of this thesis is: do the national and international Chagas disease associations, on their own and on networks, constitute a democratic strategy that enables the accomplishment of the right of access and the effectiveness of the assistance to the carriers of the disease and of better life and health conditions? The hypothesis is: the Chagas disease associations, as national and international networks - FINDECHAGAS -, are constituted by a democratic strategy as they enable an increasing awareness of the Chagas disease as a public health issue and gives the opportunity to its partners to participate actively and collectively aiming the achievement and effectiveness of the full time assistance to the disease and for better life and health conditions to its carriers. The main conceptual references handle associativism, democracy, citizenship, participation and social network approached by notorious authors of the Biological and Social Sciences field. From the methodological point of view, nature of the research is qualitative and includes documental, bibliographic and field researches. Ten testimonies of participants of the research were collected and they showed, along with the observer opinion of this researcher, that the experience of the process of foundation of a network of national and international Chagas disease associations is constituted by a democratic strategy, and it confirms the hypothesis first proposed. This outcome, despite the foundation/implement stage of the FINDECHAGAS, evidences, however, the need of strengthening the bounds, relations and articulation among the network in face of the challenges such as the increase and improvement of the quality of assistance in national and global levels to the carriers of the Chagas disease, considering, in this sense, the deepening democratic historic contexts of countries, in the present and in the future |
publishDate |
2014 |
dc.date.available.fl_str_mv |
2014-05-26 |
dc.date.issued.fl_str_mv |
2014-03-10 |
dc.date.accessioned.fl_str_mv |
2016-04-29T14:16:30Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/doctoralThesis |
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doctoralThesis |
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publishedVersion |
dc.identifier.citation.fl_str_mv |
Silva, Maria Barbosa da. National and international associations of Chagas disease: a social network for the effectiveness of the right to health 1987/2012. 2014. 154 f. Tese (Doutorado em Serviço Social) - Pontifícia Universidade Católica de São Paulo, São Paulo, 2014. |
dc.identifier.uri.fl_str_mv |
https://tede2.pucsp.br/handle/handle/17671 |
identifier_str_mv |
Silva, Maria Barbosa da. National and international associations of Chagas disease: a social network for the effectiveness of the right to health 1987/2012. 2014. 154 f. Tese (Doutorado em Serviço Social) - Pontifícia Universidade Católica de São Paulo, São Paulo, 2014. |
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Pontifícia Universidade Católica de São Paulo |
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Programa de Estudos Pós-Graduados em Serviço Social |
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PUC-SP |
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BR |
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Serviço Social |
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Pontifícia Universidade Católica de São Paulo |
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