Envelhecimento de pessoas com deficiência intelectual: qualidade de vida
Ano de defesa: | 2017 |
---|---|
Autor(a) principal: | |
Orientador(a): | |
Banca de defesa: | |
Tipo de documento: | Tese |
Tipo de acesso: | Acesso aberto |
Idioma: | por |
Instituição de defesa: |
Universidade Federal de São Carlos
Câmpus São Carlos |
Programa de Pós-Graduação: |
Programa de Pós-Graduação em Educação Especial - PPGEEs
|
Departamento: |
Não Informado pela instituição
|
País: |
Não Informado pela instituição
|
Palavras-chave em Português: | |
Palavras-chave em Inglês: | |
Área do conhecimento CNPq: | |
Link de acesso: | https://repositorio.ufscar.br/handle/ufscar/11610 |
Resumo: | From primitive societies to present days, changes in the conceptions, ideas and paradigms that govern social participation and care for people with disabilities have been occurring. These changes, associated with the increase in the life expectancy of population in general, have culminated in an unprecedented context that is the aging of the population with intellectual disabilities. This fact indicates the need to review the actions aimed to these people throughout their lives, in order to enable them to live their old age with a better quality of life and to institute public policies and specific services aimed to the care of elderly people, with intellectual disability, and to the care of their families. With the purpose of contributing to the construction of knowledge about this phenomenon, the present study aims to identify the main characteristics of people with disabilities who reached old age and how they evaluate their quality of life. For that, an empirical and exploratory research was conducted, based on phenomenological understanding, with a qualitative approach. Data collection instruments that were used: a structured interview to survey sociodemographic and functional characteristics of elderly people with intellectual disability and of their caregivers; and semi-structured interviews with elderly people with intellectual disability who presented conditions of comprehension and verbal communication, seeking to understand the meanings of psychological, social, political and historical nature in their speeches that relate to their perception of quality of life. A total of 35 people with disabilities in the aging process and their caregivers participated in the survey responding to the questionnaire on the sociodemographic and functional aspects; of these total, 19 also participated in the semi-structured interview. With this study, it was possible to understand some aspects related to aging process of people with intellectual disabilities linked to demographic transition of population in general, to social, economic, technological and scientific transformations and to characteristics of an aging people without disabilities. Also, to present the specificities of socioeconomic profile, functionalities and aspects of quality of life of elderly people with intellectual disability in the city studied, compared to results of previously published researches. The results suggest that people with disabilities in aging process, who participated in the research, have many differences among them, constituting a considerably heterogeneous group, and although they need specific care in the area of health, education and assistance to live an active aging, they evaluate their quality of life as positive. It was also possible to verify the need for greater support for the relatives of these people. |
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Gimenes, Priscila Alvarenga CardosoDenari, Fátima Elisabethhttp://lattes.cnpq.br/5575213011914394http://lattes.cnpq.br/45877536368167062019-08-05T19:45:37Z2019-08-05T19:45:37Z2017-11-14GIMENES, Priscila Alvarenga Cardoso. Envelhecimento de pessoas com deficiência intelectual: qualidade de vida. 2017. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2017. Disponível em: https://repositorio.ufscar.br/handle/ufscar/11610.https://repositorio.ufscar.br/handle/ufscar/11610From primitive societies to present days, changes in the conceptions, ideas and paradigms that govern social participation and care for people with disabilities have been occurring. These changes, associated with the increase in the life expectancy of population in general, have culminated in an unprecedented context that is the aging of the population with intellectual disabilities. This fact indicates the need to review the actions aimed to these people throughout their lives, in order to enable them to live their old age with a better quality of life and to institute public policies and specific services aimed to the care of elderly people, with intellectual disability, and to the care of their families. With the purpose of contributing to the construction of knowledge about this phenomenon, the present study aims to identify the main characteristics of people with disabilities who reached old age and how they evaluate their quality of life. For that, an empirical and exploratory research was conducted, based on phenomenological understanding, with a qualitative approach. Data collection instruments that were used: a structured interview to survey sociodemographic and functional characteristics of elderly people with intellectual disability and of their caregivers; and semi-structured interviews with elderly people with intellectual disability who presented conditions of comprehension and verbal communication, seeking to understand the meanings of psychological, social, political and historical nature in their speeches that relate to their perception of quality of life. A total of 35 people with disabilities in the aging process and their caregivers participated in the survey responding to the questionnaire on the sociodemographic and functional aspects; of these total, 19 also participated in the semi-structured interview. With this study, it was possible to understand some aspects related to aging process of people with intellectual disabilities linked to demographic transition of population in general, to social, economic, technological and scientific transformations and to characteristics of an aging people without disabilities. Also, to present the specificities of socioeconomic profile, functionalities and aspects of quality of life of elderly people with intellectual disability in the city studied, compared to results of previously published researches. The results suggest that people with disabilities in aging process, who participated in the research, have many differences among them, constituting a considerably heterogeneous group, and although they need specific care in the area of health, education and assistance to live an active aging, they evaluate their quality of life as positive. It was also possible to verify the need for greater support for the relatives of these people.Desde as sociedades primitivas até os dias atuais, vem ocorrendo modificações nas concepções, ideias e paradigmas que regem a participação social e os cuidados destinados às pessoas com deficiência. Essas mudanças, associadas ao aumento da expectativa de vida da população em geral, têm culminado em um quadro inédito que é o envelhecimento da população com deficiência intelectual. Este fato assinala a necessidade de rever as ações destinadas a essas pessoas ao longo de suas vidas, a fim de possibilitar a vivência da velhice com melhor qualidade de vida e de instituir políticas públicas e serviços específicos destinados ao atendimento da pessoa idosa com deficiência intelectual e de seus familiares. Com o intuito de contribuir com a construção de conhecimentos sobre este fenômeno, a presente pesquisa tem por objetivo identificar as principais características das pessoas com deficiência que chegaram à velhice e como elas avaliam sua qualidade de vida. Para tanto, foi empreendida uma pesquisa de caráter empírico e exploratório, a partir do entendimento fenomenológico, com abordagem qualitativa. Foram utilizados como instrumentos de coleta de dados: entrevista estruturada para levantamento de características sociodemográficas e de funcionalidade realizadas com a pessoa idosa com deficiência intelectual e seus cuidadores; e entrevistas semiestruturadas com as pessoas idosas com deficiência intelectual que apresentaram condições de compreensão e comunicação verbal buscando apreender os significados de natureza psicológica, social, política e histórica nas suas falas que dizem respeito à sua percepção da qualidade de vida. Participaram da pesquisa, respondendo o questionário sobre os aspectos sociodemográfico e de funcionalidades, 35 pessoas com deficiência em processo de envelhecimento e seus cuidadores; destes, 19 também participaram da entrevista semiestruturada. Com a realização dessa pesquisa foi possível compreender alguns aspectos referentes ao processo de envelhecimento das pessoas com deficiência intelectual atrelado à transição demográfica da população em geral, às transformações sociais, econômicas, tecnológicas e científicas e às características do envelhecimento da população sem deficiência. E, ainda, apresentar as especificidades do perfil socioeconômico, funcionalidades e aspectos da qualidade de vida das pessoas idosas com deficiência intelectual no município pesquisado, comparado aos resultados de pesquisas anteriormente publicadas. Os resultados sugerem que as pessoas com deficiência em processo de envelhecimento que participaram da pesquisa apresentam muitas diferenças entre si, constituindo um grupo consideravelmente heterogêneo e, embora necessitem de atendimentos específicos na área da saúde, educação e assistência para que vivenciem um envelhecimento ativo, avaliam como positiva sua qualidade de vida. Também foi possível constatar a necessidade de maior suporte para os familiares destas pessoas.Não recebi financiamentoporUniversidade Federal de São CarlosCâmpus São CarlosPrograma de Pós-Graduação em Educação Especial - PPGEEsUFSCarEducação EspecialDeficiência IntelectualEnvelhecimentoQualidade de vidaSpecial EducationIntellectual DisabilityAgingQuality of LifeCIENCIAS HUMANAS::EDUCACAOEnvelhecimento de pessoas com deficiência intelectual: qualidade de vidaAging of people with intellectual disability: quality of lifeinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisOnlineinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFSCARinstname:Universidade Federal de São Carlos (UFSCAR)instacron:UFSCARORIGINAL1TESE PRISCILA ALVARENGA CARDOSO GIMENES (1).pdf1TESE PRISCILA ALVARENGA CARDOSO GIMENES (1).pdfapplication/pdf1623528https://{{ getenv "DSPACE_HOST" "repositorio.ufscar.br" }}/bitstream/ufscar/11610/1/1TESE%20PRISCILA%20ALVARENGA%20CARDOSO%20GIMENES%20%281%29.pdfd2dd981794424b63ae6f2f0fefd8daaeMD51LICENSElicense.txtlicense.txttext/plain; charset=utf-81957https://{{ getenv "DSPACE_HOST" "repositorio.ufscar.br" }}/bitstream/ufscar/11610/4/license.txtae0398b6f8b235e40ad82cba6c50031dMD54TEXT1TESE PRISCILA ALVARENGA CARDOSO GIMENES (1).pdf.txt1TESE PRISCILA ALVARENGA CARDOSO GIMENES (1).pdf.txtExtracted texttext/plain410657https://{{ getenv "DSPACE_HOST" "repositorio.ufscar.br" }}/bitstream/ufscar/11610/5/1TESE%20PRISCILA%20ALVARENGA%20CARDOSO%20GIMENES%20%281%29.pdf.txta41e2691078373973c9c8cf972cb4d03MD55THUMBNAIL1TESE PRISCILA ALVARENGA CARDOSO GIMENES (1).pdf.jpg1TESE PRISCILA ALVARENGA CARDOSO GIMENES (1).pdf.jpgIM Thumbnailimage/jpeg5757https://{{ getenv "DSPACE_HOST" "repositorio.ufscar.br" }}/bitstream/ufscar/11610/6/1TESE%20PRISCILA%20ALVARENGA%20CARDOSO%20GIMENES%20%281%29.pdf.jpgc4ecd8d934c2f49ab0f9f2901c4946f9MD56ufscar/116102019-09-11 04:20:10.061oai:repositorio.ufscar.br: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Repositório InstitucionalPUBhttps://repositorio.ufscar.br/oai/requestopendoar:43222023-05-25T12:55:06.010276Repositório Institucional da UFSCAR - Universidade Federal de São Carlos (UFSCAR)false |
dc.title.por.fl_str_mv |
Envelhecimento de pessoas com deficiência intelectual: qualidade de vida |
dc.title.alternative.eng.fl_str_mv |
Aging of people with intellectual disability: quality of life |
title |
Envelhecimento de pessoas com deficiência intelectual: qualidade de vida |
spellingShingle |
Envelhecimento de pessoas com deficiência intelectual: qualidade de vida Gimenes, Priscila Alvarenga Cardoso Educação Especial Deficiência Intelectual Envelhecimento Qualidade de vida Special Education Intellectual Disability Aging Quality of Life CIENCIAS HUMANAS::EDUCACAO |
title_short |
Envelhecimento de pessoas com deficiência intelectual: qualidade de vida |
title_full |
Envelhecimento de pessoas com deficiência intelectual: qualidade de vida |
title_fullStr |
Envelhecimento de pessoas com deficiência intelectual: qualidade de vida |
title_full_unstemmed |
Envelhecimento de pessoas com deficiência intelectual: qualidade de vida |
title_sort |
Envelhecimento de pessoas com deficiência intelectual: qualidade de vida |
author |
Gimenes, Priscila Alvarenga Cardoso |
author_facet |
Gimenes, Priscila Alvarenga Cardoso |
author_role |
author |
dc.contributor.authorlattes.por.fl_str_mv |
http://lattes.cnpq.br/4587753636816706 |
dc.contributor.author.fl_str_mv |
Gimenes, Priscila Alvarenga Cardoso |
dc.contributor.advisor1.fl_str_mv |
Denari, Fátima Elisabeth |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/5575213011914394 |
contributor_str_mv |
Denari, Fátima Elisabeth |
dc.subject.por.fl_str_mv |
Educação Especial Deficiência Intelectual Envelhecimento Qualidade de vida |
topic |
Educação Especial Deficiência Intelectual Envelhecimento Qualidade de vida Special Education Intellectual Disability Aging Quality of Life CIENCIAS HUMANAS::EDUCACAO |
dc.subject.eng.fl_str_mv |
Special Education Intellectual Disability Aging Quality of Life |
dc.subject.cnpq.fl_str_mv |
CIENCIAS HUMANAS::EDUCACAO |
description |
From primitive societies to present days, changes in the conceptions, ideas and paradigms that govern social participation and care for people with disabilities have been occurring. These changes, associated with the increase in the life expectancy of population in general, have culminated in an unprecedented context that is the aging of the population with intellectual disabilities. This fact indicates the need to review the actions aimed to these people throughout their lives, in order to enable them to live their old age with a better quality of life and to institute public policies and specific services aimed to the care of elderly people, with intellectual disability, and to the care of their families. With the purpose of contributing to the construction of knowledge about this phenomenon, the present study aims to identify the main characteristics of people with disabilities who reached old age and how they evaluate their quality of life. For that, an empirical and exploratory research was conducted, based on phenomenological understanding, with a qualitative approach. Data collection instruments that were used: a structured interview to survey sociodemographic and functional characteristics of elderly people with intellectual disability and of their caregivers; and semi-structured interviews with elderly people with intellectual disability who presented conditions of comprehension and verbal communication, seeking to understand the meanings of psychological, social, political and historical nature in their speeches that relate to their perception of quality of life. A total of 35 people with disabilities in the aging process and their caregivers participated in the survey responding to the questionnaire on the sociodemographic and functional aspects; of these total, 19 also participated in the semi-structured interview. With this study, it was possible to understand some aspects related to aging process of people with intellectual disabilities linked to demographic transition of population in general, to social, economic, technological and scientific transformations and to characteristics of an aging people without disabilities. Also, to present the specificities of socioeconomic profile, functionalities and aspects of quality of life of elderly people with intellectual disability in the city studied, compared to results of previously published researches. The results suggest that people with disabilities in aging process, who participated in the research, have many differences among them, constituting a considerably heterogeneous group, and although they need specific care in the area of health, education and assistance to live an active aging, they evaluate their quality of life as positive. It was also possible to verify the need for greater support for the relatives of these people. |
publishDate |
2017 |
dc.date.issued.fl_str_mv |
2017-11-14 |
dc.date.accessioned.fl_str_mv |
2019-08-05T19:45:37Z |
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2019-08-05T19:45:37Z |
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info:eu-repo/semantics/publishedVersion |
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dc.identifier.citation.fl_str_mv |
GIMENES, Priscila Alvarenga Cardoso. Envelhecimento de pessoas com deficiência intelectual: qualidade de vida. 2017. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2017. Disponível em: https://repositorio.ufscar.br/handle/ufscar/11610. |
dc.identifier.uri.fl_str_mv |
https://repositorio.ufscar.br/handle/ufscar/11610 |
identifier_str_mv |
GIMENES, Priscila Alvarenga Cardoso. Envelhecimento de pessoas com deficiência intelectual: qualidade de vida. 2017. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2017. Disponível em: https://repositorio.ufscar.br/handle/ufscar/11610. |
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Universidade Federal de São Carlos Câmpus São Carlos |
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Programa de Pós-Graduação em Educação Especial - PPGEEs |
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UFSCar |
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Universidade Federal de São Carlos Câmpus São Carlos |
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