Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro
Ano de defesa: | 2018 |
---|---|
Autor(a) principal: | |
Orientador(a): | |
Banca de defesa: | |
Tipo de documento: | Dissertação |
Tipo de acesso: | Acesso aberto |
Idioma: | por |
Instituição de defesa: |
Universidade Estadual de Feira de Santana
|
Programa de Pós-Graduação: |
Mestrado Acad?mico em Sa?de Coletiva
|
Departamento: |
DEPARTAMENTO DE SA?DE
|
País: |
Brasil
|
Palavras-chave em Português: | |
Palavras-chave em Inglês: | |
Área do conhecimento CNPq: | |
Link de acesso: | http://tede2.uefs.br:8080/handle/tede/868 |
Resumo: | Introduction: Stigma is a discredit or strong disapproval of personal characteristics, attributed to a person who has an undesirable difference that goes against the standards set by society. Objective: To perform cross-cultural adaptation of the Stigma Scale Perceived by People with Sickle Cell Disease to the Brazilian context. Methodology: This was a cross-cultural adaptation of a scale that measures the stigma perceived by people with sickle cell disease in relation to general practitioners, physicians, nurses and family members. The study included 14 individuals as judges with knowledge in the subject studied and 30 people with sickle cell disease constituted the target population to assess the relevance, clarity and representativeness of the stigma construct in the instrument being adapted. The transcultural adaptation of the instrument followed the steps: translation, retranslation, evaluation of the judges committee, revision of the instrument, discussion with the author, approval of the first version, application in the population, reassessment by committee of experts and approval of the final version of the instrument. After analyzing the specialists and the target population, the Percentage of Concordance of each item was calculated and those with percentages lower than 80% were re-evaluated by the specialists. Results: In the evaluation of the instrument by the expert committee, 8 items had percentages lower than 80% for pertinence and 11 for clarity, being these, being necessary to reformulate the writing to improve the understanding of the target population, according to recommendations in the literature. The version evaluated by the target population showed that the instrument was clear and adequate for the understanding of people with DF, however, it was suggested to modify the graduation of responses from 6 to 3. We emphasize that some items, even presenting a percentage of agreement, 80% were rewritten to facilitate understanding of people with DF. Conclusions: The SCD-HRSS cross-cultural adaptation process represented an important step in the field of health, since after the validation of the instrument, it could be used for health professionals and public health researchers to learn about the experiences of stigma of people with FD in different social relationships and how it affects the quality of life and health of these individuals. In addition, it can contribute to a better understanding of the phenomenon and to subsidize new studies in the area. |
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Carvalho, Evanilda Souza de Santana03404913531http://lattes.cnpq.br/2678496585556633Cerqueira, Sheila Santa Barbara2019-09-10T20:13:28Z2018-05-28CERQUEIRA, Sheila Santa Barbara. Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro. 2018. 138 f. Disserta??o (Mestrado Acad?mico em Sa?de Coletiva)- Universidade Estadual de Feira de Santana, Feira de Santana, 2018.http://tede2.uefs.br:8080/handle/tede/868Introduction: Stigma is a discredit or strong disapproval of personal characteristics, attributed to a person who has an undesirable difference that goes against the standards set by society. Objective: To perform cross-cultural adaptation of the Stigma Scale Perceived by People with Sickle Cell Disease to the Brazilian context. Methodology: This was a cross-cultural adaptation of a scale that measures the stigma perceived by people with sickle cell disease in relation to general practitioners, physicians, nurses and family members. The study included 14 individuals as judges with knowledge in the subject studied and 30 people with sickle cell disease constituted the target population to assess the relevance, clarity and representativeness of the stigma construct in the instrument being adapted. The transcultural adaptation of the instrument followed the steps: translation, retranslation, evaluation of the judges committee, revision of the instrument, discussion with the author, approval of the first version, application in the population, reassessment by committee of experts and approval of the final version of the instrument. After analyzing the specialists and the target population, the Percentage of Concordance of each item was calculated and those with percentages lower than 80% were re-evaluated by the specialists. Results: In the evaluation of the instrument by the expert committee, 8 items had percentages lower than 80% for pertinence and 11 for clarity, being these, being necessary to reformulate the writing to improve the understanding of the target population, according to recommendations in the literature. The version evaluated by the target population showed that the instrument was clear and adequate for the understanding of people with DF, however, it was suggested to modify the graduation of responses from 6 to 3. We emphasize that some items, even presenting a percentage of agreement, 80% were rewritten to facilitate understanding of people with DF. Conclusions: The SCD-HRSS cross-cultural adaptation process represented an important step in the field of health, since after the validation of the instrument, it could be used for health professionals and public health researchers to learn about the experiences of stigma of people with FD in different social relationships and how it affects the quality of life and health of these individuals. In addition, it can contribute to a better understanding of the phenomenon and to subsidize new studies in the area.Introdu??o: O estigma ? um descr?dito ou uma forte desaprova??o de caracter?sticas pessoais, atribu?da a uma pessoa que possua uma diferen?a indesej?vel que v? contra os padr?es estabelecidos pela sociedade. Objetivo: Realizar adapta??o transcultural da Escala de Estigma Percebido por Pessoas com Doen?a Falciforme para o contexto brasileiro. Metodologia: Tratou-se de um estudo metodol?gico, onde foi realizada a adapta??o transcultural de uma escala que mensura o estigma percebido por pessoas com doen?a falciforme na rela??o com as pessoas me geral, m?dicos, enfermeiros e familiares. Participaram do estudo 14 profissionais de n?vel superior de distintas ?reas das ci?ncias humanas e da sa?de na qualidade de juizes e 30 pessoas com doen?a falciforme constitu?ram a popula??o alvo para avalia??o da pertin?ncia, clareza e representatividade do construto estigma no instrumento em processo de adapta??o. A adapta??o transcultural do instrumento seguiu as etapas: tradu??o, retradu??o, avalia??o do comit? de ju?zes, revis?o do instrumento, discuss?o com a autora, aprova??o da primeira vers?o, aplica??o na popula??o, reavalia??o por comit? de especialistas e aprova??o da vers?o final do instrumento. Ap?s an?lise dos especialistas e popula??o alvo procedeu-se o c?lculo das Porcentagens de Concord?ncia de cada item e aqueles com porcentagens inferior a 80% foram reavaliados pelos especialistas. Resultados: Na avalia??o do instrumento pelo comit? de especialistas 8 itens apresentaram porcentagens inferior a 80% para pertin?ncia e 11 para a clareza, sendo estes, sendo necess?rio reformular a escrita para melhorar a compreens?o da popula??o alvo, conforme recomenda??es da literatura. A vers?o avaliada pela popula??o-alvo mostrou que o instrumento estava claro e adequado para a compreens?o das pessoas com DF, no entanto, foi sugerido modicar a gradua??o de respostas de 6 para 3. Ressaltamos que alguns itens, mesmo apresentando porcentagem de concord?ncia superior a 80% foram reescritos para facilitar na compreens?o das pessoas com DF. Conclus?es: O processo de adapta??o transcultural da SCD-HRSS representou um passo importante para o campo da sa?de, uma vez que ap?s a valida??o do instrumento, o mesmo poder? servir para profissionais de sa?de e pesquisadores da ?rea da sa?de p?blica conhecer as experiencias de estigma das pessoas com DF em diferentes rela??es sociais e como interfere na qualidade de vida e sa?de desses indiv?duos. Al?m do mais, poder? contribuir para melhor compreens?o do fen?meno e subsidiar novos estudos na ?rea.Submitted by Ricardo Cedraz Duque Moliterno (ricardo.moliterno@uefs.br) on 2019-09-10T20:13:28Z No. of bitstreams: 1 Disserta??o vers?o final SHEILA.pdf: 1500450 bytes, checksum: de53e2fe4743e9c0df33a33f1078024f (MD5)Made available in DSpace on 2019-09-10T20:13:28Z (GMT). No. of bitstreams: 1 Disserta??o vers?o final SHEILA.pdf: 1500450 bytes, checksum: de53e2fe4743e9c0df33a33f1078024f (MD5) Previous issue date: 2018-05-28Funda??o de Amparo ? Pesquisa do Estado da Bahia - FAPEBapplication/pdfporUniversidade Estadual de Feira de SantanaMestrado Acad?mico em Sa?de ColetivaUEFSBrasilDEPARTAMENTO DE SA?DEAnemia falciformeEstigma socialPsicometriaSickle cellSocial stgmaPsychometryCIENCIAS DA SAUDE::SAUDE COLETIVACIENCIAS DA SAUDEAdapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiroinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesis-21222253766072083266006006006006001006395569471477890-61731671037544951998765449414823306929-8233071094704392586info:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UEFSinstname:Universidade Estadual de Feira de Santana (UEFS)instacron:UEFSORIGINALDisserta??o vers?o final SHEILA.pdfDisserta??o vers?o final SHEILA.pdfapplication/pdf1500450http://tede2.uefs.br:8080/bitstream/tede/868/2/Disserta%C3%A7%C3%A3o+vers%C3%A3o+final+SHEILA.pdfde53e2fe4743e9c0df33a33f1078024fMD52LICENSElicense.txtlicense.txttext/plain; charset=utf-82089http://tede2.uefs.br:8080/bitstream/tede/868/1/license.txt7b5ba3d2445355f386edab96125d42b7MD51tede/8682019-09-10 17:13:28.378oai:tede2.uefs.br:8080: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Biblioteca Digital de Teses e Dissertaçõeshttp://tede2.uefs.br:8080/PUBhttp://tede2.uefs.br:8080/oai/requestbcuefs@uefs.br|| bcref@uefs.br||bcuefs@uefs.bropendoar:2019-09-10T20:13:28Biblioteca Digital de Teses e Dissertações da UEFS - Universidade Estadual de Feira de Santana (UEFS)false |
dc.title.por.fl_str_mv |
Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro |
title |
Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro |
spellingShingle |
Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro Cerqueira, Sheila Santa Barbara Anemia falciforme Estigma social Psicometria Sickle cell Social stgma Psychometry CIENCIAS DA SAUDE::SAUDE COLETIVA CIENCIAS DA SAUDE |
title_short |
Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro |
title_full |
Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro |
title_fullStr |
Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro |
title_full_unstemmed |
Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro |
title_sort |
Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro |
author |
Cerqueira, Sheila Santa Barbara |
author_facet |
Cerqueira, Sheila Santa Barbara |
author_role |
author |
dc.contributor.advisor1.fl_str_mv |
Carvalho, Evanilda Souza de Santana |
dc.contributor.authorID.fl_str_mv |
03404913531 |
dc.contributor.authorLattes.fl_str_mv |
http://lattes.cnpq.br/2678496585556633 |
dc.contributor.author.fl_str_mv |
Cerqueira, Sheila Santa Barbara |
contributor_str_mv |
Carvalho, Evanilda Souza de Santana |
dc.subject.por.fl_str_mv |
Anemia falciforme Estigma social Psicometria |
topic |
Anemia falciforme Estigma social Psicometria Sickle cell Social stgma Psychometry CIENCIAS DA SAUDE::SAUDE COLETIVA CIENCIAS DA SAUDE |
dc.subject.eng.fl_str_mv |
Sickle cell Social stgma Psychometry |
dc.subject.cnpq.fl_str_mv |
CIENCIAS DA SAUDE::SAUDE COLETIVA CIENCIAS DA SAUDE |
description |
Introduction: Stigma is a discredit or strong disapproval of personal characteristics, attributed to a person who has an undesirable difference that goes against the standards set by society. Objective: To perform cross-cultural adaptation of the Stigma Scale Perceived by People with Sickle Cell Disease to the Brazilian context. Methodology: This was a cross-cultural adaptation of a scale that measures the stigma perceived by people with sickle cell disease in relation to general practitioners, physicians, nurses and family members. The study included 14 individuals as judges with knowledge in the subject studied and 30 people with sickle cell disease constituted the target population to assess the relevance, clarity and representativeness of the stigma construct in the instrument being adapted. The transcultural adaptation of the instrument followed the steps: translation, retranslation, evaluation of the judges committee, revision of the instrument, discussion with the author, approval of the first version, application in the population, reassessment by committee of experts and approval of the final version of the instrument. After analyzing the specialists and the target population, the Percentage of Concordance of each item was calculated and those with percentages lower than 80% were re-evaluated by the specialists. Results: In the evaluation of the instrument by the expert committee, 8 items had percentages lower than 80% for pertinence and 11 for clarity, being these, being necessary to reformulate the writing to improve the understanding of the target population, according to recommendations in the literature. The version evaluated by the target population showed that the instrument was clear and adequate for the understanding of people with DF, however, it was suggested to modify the graduation of responses from 6 to 3. We emphasize that some items, even presenting a percentage of agreement, 80% were rewritten to facilitate understanding of people with DF. Conclusions: The SCD-HRSS cross-cultural adaptation process represented an important step in the field of health, since after the validation of the instrument, it could be used for health professionals and public health researchers to learn about the experiences of stigma of people with FD in different social relationships and how it affects the quality of life and health of these individuals. In addition, it can contribute to a better understanding of the phenomenon and to subsidize new studies in the area. |
publishDate |
2018 |
dc.date.issued.fl_str_mv |
2018-05-28 |
dc.date.accessioned.fl_str_mv |
2019-09-10T20:13:28Z |
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info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/masterThesis |
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dc.identifier.citation.fl_str_mv |
CERQUEIRA, Sheila Santa Barbara. Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro. 2018. 138 f. Disserta??o (Mestrado Acad?mico em Sa?de Coletiva)- Universidade Estadual de Feira de Santana, Feira de Santana, 2018. |
dc.identifier.uri.fl_str_mv |
http://tede2.uefs.br:8080/handle/tede/868 |
identifier_str_mv |
CERQUEIRA, Sheila Santa Barbara. Adapta??o transcultural e valida??o de conte?do da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro. 2018. 138 f. Disserta??o (Mestrado Acad?mico em Sa?de Coletiva)- Universidade Estadual de Feira de Santana, Feira de Santana, 2018. |
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