Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde
Ano de defesa: | 2022 |
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Autor(a) principal: | |
Orientador(a): | |
Banca de defesa: | , , , |
Tipo de documento: | Tese |
Tipo de acesso: | Acesso aberto |
Idioma: | por |
Instituição de defesa: |
Universidade Federal de Santa Maria
Centro de Ciências da Saúde |
Programa de Pós-Graduação: |
Programa de Pós-Graduação em Enfermagem
|
Departamento: |
Enfermagem
|
País: |
Brasil
|
Palavras-chave em Português: | |
Palavras-chave em Inglês: | |
Área do conhecimento CNPq: | |
Link de acesso: | http://repositorio.ufsm.br/handle/1/25808 |
Resumo: | Objective: to interpret the cultural modulation of family care for children dependent on health technology in the different contexts in which they are inserted. Method: ethnographic study with a qualitative approach. The informants of the study were the technology-dependent children, their families and people around them, completing ten general informants and 5 keys. The selection of families occurred intentionally from the database of the researcher's master's dissertation. Data production completed 300 hours, in a period of 10 months, from June 2019 to April 2020 in Santa Maria. It started at the families' homes and the researcher was able to accompany them in their places of conviviality (school, health spaces and community). Participant observation and ethnographic interviews with field diary records were used, and the genogram and ecomap were used as collection instruments. For the interpretation of data, the following phases proposed by ethnonursing were followed: (1) collection, description and documentation of raw data; (2) identification and characterization of descriptors and components; (3) patterns and contextual analysis and (4) main themes, research findings, theoretical formulations and recommendations. Ethical precepts were respected in accordance with Resolution 466/12 and Resolution 510/16. The study has been approved by the Research Ethics Committee of the institution with opinion number 3,319,351. Results: they were divided into two chapters, one dealing with the organization and family configuration, for the care of the child dependent on health technology, as well as the available support network. Families need the support of people beyond the family nucleus to guarantee care and consider the school and health services as part of this network. The second talks about the limits and possibilities found in the course of care, where socioeconomic difficulties arise, the lack of coverage on the part of public policies, mothers as main caregivers, fathers providers of sustenance, the social space being the space of care , the prejudice that still exists, the school inclusion of children, the lack of listening. Conclusion: families of children dependent on health technologies need to carry out cultural modulations to face the limits they encounter during the course of care and reinvent themselves within the family configuration and support network to transform these limits into possibilities to guarantee the quality of care. these children's lives. |
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2022-08-05T13:14:08Z2022-08-05T13:14:08Z2022-06-20http://repositorio.ufsm.br/handle/1/25808Objective: to interpret the cultural modulation of family care for children dependent on health technology in the different contexts in which they are inserted. Method: ethnographic study with a qualitative approach. The informants of the study were the technology-dependent children, their families and people around them, completing ten general informants and 5 keys. The selection of families occurred intentionally from the database of the researcher's master's dissertation. Data production completed 300 hours, in a period of 10 months, from June 2019 to April 2020 in Santa Maria. It started at the families' homes and the researcher was able to accompany them in their places of conviviality (school, health spaces and community). Participant observation and ethnographic interviews with field diary records were used, and the genogram and ecomap were used as collection instruments. For the interpretation of data, the following phases proposed by ethnonursing were followed: (1) collection, description and documentation of raw data; (2) identification and characterization of descriptors and components; (3) patterns and contextual analysis and (4) main themes, research findings, theoretical formulations and recommendations. Ethical precepts were respected in accordance with Resolution 466/12 and Resolution 510/16. The study has been approved by the Research Ethics Committee of the institution with opinion number 3,319,351. Results: they were divided into two chapters, one dealing with the organization and family configuration, for the care of the child dependent on health technology, as well as the available support network. Families need the support of people beyond the family nucleus to guarantee care and consider the school and health services as part of this network. The second talks about the limits and possibilities found in the course of care, where socioeconomic difficulties arise, the lack of coverage on the part of public policies, mothers as main caregivers, fathers providers of sustenance, the social space being the space of care , the prejudice that still exists, the school inclusion of children, the lack of listening. Conclusion: families of children dependent on health technologies need to carry out cultural modulations to face the limits they encounter during the course of care and reinvent themselves within the family configuration and support network to transform these limits into possibilities to guarantee the quality of care. these children's lives.Objetivo: interpretar a modulação cultural do cuidado familial à criança dependente de tecnologia em saúde nos diferentes contextos em que estão inseridos. Método: estudo etnográfico, com abordagem qualitativa. Os informantes do estudo, foram as crianças dependentes de tecnologia, seus familiares e pessoas do seu convívio, completando dez informantes gerais e 5 chaves. A seleção das famílias ocorreu de maneira intencional a partir do banco de dados da dissertação de mestrado da pesquisadora. A produção dos dados completou 300 horas, em um período de 10 meses, de junho de 2019 a abril de 2020 em Santa Maria. Teve início no domicílio das famílias e a pesquisadora pôde acompanha-las em seus locais de convívio (escola, espaços de saúde e comunidade). Foi utilizada a observação participante e a entrevista etnográfica com registros em diário de campo, e, o genograma e o ecomapa, como instrumentos de coleta. Para a interpretação dos dados foram seguidas as seguintes fases propostas pela etnoenfermagem: (1) coleta, descrição e documentação de dados brutos; (2) identificação e caracterização dos descritores e componentes; (3) padrões e análise contextual e (4) temas principais, resultados da pesquisa, formulações teóricas e recomendações. Os preceitos éticos foram respeitados conforme a Resolução 466/12 e a Resolução 510/16. O estudo possui aprovação pelo Comitê de Ética em Pesquisa da instituição com o número do parecer 3.319.351. Resultados: apontaram aspectos da organização e configuração familiar, para o cuidado da criança dependente de tecnologia em saúde e da rede de apoio disponível. As famílias precisam do apoio de pessoas para além do núcleo familiar para garantir o cuidado e consideram a escola e os serviços de saúde como parte dessa rede. Os limites e possibilidades encontrados no decorrer do cuidado, perpassam pelas dificuldades socioeconômicas, a falta de abrangência por parte das políticas públicas, as mães como cuidadoras principais, os pais provedores do sustento, o espaço social sendo o espaço de cuidado, o preconceito existente, a inclusão escolar das crianças, a falta de escuta. Conclusão: as famílias de crianças dependentes de tecnologias em saúde precisam realizar modulações culturais para enfrentar os limites que encontram no decorrer do percurso de cuidado e se reinventar dentro da configuração familiar e da rede de apoio para transformar esses limites em possibilidades em prol da qualidade de vida dessas crianças.porUniversidade Federal de Santa MariaCentro de Ciências da SaúdePrograma de Pós-Graduação em EnfermagemUFSMBrasilEnfermagemAttribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessTecnologia em saúdeEnfermagemCriançaFamíliaAntropologia culturalHealth technologyNursingChildFamilyCultural anthropologyCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMModulação cultural do cuidado familial à criança dependente de tecnologia em saúdeCultural modulation of family care to health technology dependent childreninfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisNeves, Eliane Tatschhttp://lattes.cnpq.br/2267710105940770Wilhelm, Laís AntunesToso, Beatriz Rosana Gonçalves de OliveiraPrates, Lisie AlendeSchimith, Maria DeniseSantos, Raissa Passos doshttp://lattes.cnpq.br/3883043418146997Silva, Júlia Heinz da4004000000006006006006006006006006006b9cb74a-f6ee-4f27-bbad-1ceb257903a5e57b5d3f-b4f3-417d-9f65-1e36f4f154e1ed1ca555-3a04-4bbd-9c5a-cf19d036cd6c64a07e9c-a256-48be-899b-f3bf5df9352681aca3c2-37c0-49d9-b8b4-57d0c6792fef3a762ba8-4cbd-4e02-8f92-db299dcf09619961f809-1216-4cfb-96ce-7e62ed0c74c1reponame:Biblioteca Digital de Teses e Dissertações do UFSMinstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMORIGINALTES_PPGENFERMAGEM_2022_SILVA_JULIA.pdfTES_PPGENFERMAGEM_2022_SILVA_JULIA.pdfTese de Doutoradoapplication/pdf2159190http://repositorio.ufsm.br/bitstream/1/25808/1/TES_PPGENFERMAGEM_2022_SILVA_JULIA.pdf78d4e80d7f795d7122537c38bad7171bMD51CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-8805http://repositorio.ufsm.br/bitstream/1/25808/2/license_rdf4460e5956bc1d1639be9ae6146a50347MD52LICENSElicense.txtlicense.txttext/plain; charset=utf-816http://repositorio.ufsm.br/bitstream/1/25808/3/license.txtf8fcb28efb1c8cf0dc096bec902bf4c4MD531/258082022-08-05 10:14:08.462oai:repositorio.ufsm.br:1/25808Q3JlYXRpdmUgQ29tbW9ucw==Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufsm.br/ONGhttps://repositorio.ufsm.br/oai/requestatendimento.sib@ufsm.br||tedebc@gmail.comopendoar:2022-08-05T13:14:08Biblioteca Digital de Teses e Dissertações do UFSM - Universidade Federal de Santa Maria (UFSM)false |
dc.title.por.fl_str_mv |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
dc.title.alternative.eng.fl_str_mv |
Cultural modulation of family care to health technology dependent children |
title |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
spellingShingle |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde Silva, Júlia Heinz da Tecnologia em saúde Enfermagem Criança Família Antropologia cultural Health technology Nursing Child Family Cultural anthropology CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
title_short |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
title_full |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
title_fullStr |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
title_full_unstemmed |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
title_sort |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
author |
Silva, Júlia Heinz da |
author_facet |
Silva, Júlia Heinz da |
author_role |
author |
dc.contributor.advisor1.fl_str_mv |
Neves, Eliane Tatsch |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/2267710105940770 |
dc.contributor.advisor-co1.fl_str_mv |
Wilhelm, Laís Antunes |
dc.contributor.referee1.fl_str_mv |
Toso, Beatriz Rosana Gonçalves de Oliveira |
dc.contributor.referee2.fl_str_mv |
Prates, Lisie Alende |
dc.contributor.referee3.fl_str_mv |
Schimith, Maria Denise |
dc.contributor.referee4.fl_str_mv |
Santos, Raissa Passos dos |
dc.contributor.authorLattes.fl_str_mv |
http://lattes.cnpq.br/3883043418146997 |
dc.contributor.author.fl_str_mv |
Silva, Júlia Heinz da |
contributor_str_mv |
Neves, Eliane Tatsch Wilhelm, Laís Antunes Toso, Beatriz Rosana Gonçalves de Oliveira Prates, Lisie Alende Schimith, Maria Denise Santos, Raissa Passos dos |
dc.subject.por.fl_str_mv |
Tecnologia em saúde Enfermagem Criança Família Antropologia cultural |
topic |
Tecnologia em saúde Enfermagem Criança Família Antropologia cultural Health technology Nursing Child Family Cultural anthropology CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
dc.subject.eng.fl_str_mv |
Health technology Nursing Child Family Cultural anthropology |
dc.subject.cnpq.fl_str_mv |
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
description |
Objective: to interpret the cultural modulation of family care for children dependent on health technology in the different contexts in which they are inserted. Method: ethnographic study with a qualitative approach. The informants of the study were the technology-dependent children, their families and people around them, completing ten general informants and 5 keys. The selection of families occurred intentionally from the database of the researcher's master's dissertation. Data production completed 300 hours, in a period of 10 months, from June 2019 to April 2020 in Santa Maria. It started at the families' homes and the researcher was able to accompany them in their places of conviviality (school, health spaces and community). Participant observation and ethnographic interviews with field diary records were used, and the genogram and ecomap were used as collection instruments. For the interpretation of data, the following phases proposed by ethnonursing were followed: (1) collection, description and documentation of raw data; (2) identification and characterization of descriptors and components; (3) patterns and contextual analysis and (4) main themes, research findings, theoretical formulations and recommendations. Ethical precepts were respected in accordance with Resolution 466/12 and Resolution 510/16. The study has been approved by the Research Ethics Committee of the institution with opinion number 3,319,351. Results: they were divided into two chapters, one dealing with the organization and family configuration, for the care of the child dependent on health technology, as well as the available support network. Families need the support of people beyond the family nucleus to guarantee care and consider the school and health services as part of this network. The second talks about the limits and possibilities found in the course of care, where socioeconomic difficulties arise, the lack of coverage on the part of public policies, mothers as main caregivers, fathers providers of sustenance, the social space being the space of care , the prejudice that still exists, the school inclusion of children, the lack of listening. Conclusion: families of children dependent on health technologies need to carry out cultural modulations to face the limits they encounter during the course of care and reinvent themselves within the family configuration and support network to transform these limits into possibilities to guarantee the quality of care. these children's lives. |
publishDate |
2022 |
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2022-08-05T13:14:08Z |
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2022-08-05T13:14:08Z |
dc.date.issued.fl_str_mv |
2022-06-20 |
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info:eu-repo/semantics/doctoralThesis |
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Universidade Federal de Santa Maria Centro de Ciências da Saúde |
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Universidade Federal de Santa Maria Centro de Ciências da Saúde |
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