Hanseníase e exclusão social: um estudo de caso sobre pacientes de uma instituição de saúde em Minas Gerais

• Ano de defesa: 2012
• Autor(a) principal: Hilário, Marco Aurélio de Souza
• Orientador(a): Teixeira, Karla Maria Damiano
• Banca de defesa: Farias, Rita de Cássia Pereira , Silva, Marcos Vieira
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Federal de Viçosa
• Programa de Pós-Graduação: Mestrado em Economia Doméstica
• Departamento: Economia familiar; Estudo da família; Teoria econômica e Educação do consumidor
• País: BR
• Palavras-chave em Português: Hanseníase; Exclusão social; Saúde pública
• Palavras-chave em Inglês: Hansen s disease; Social exclusion; Public health
• Área do conhecimento CNPq: CNPQ::CIENCIAS SOCIAIS APLICADAS::ECONOMIA DOMESTICA
• Link de acesso: http://locus.ufv.br/handle/123456789/3361

The objective of this work was to identify the consequences of exclusion and isolation on the personal, family and social life of patients affected by Hansen‟s disease and interned in institutions for treatment, identifying the aspects of reproduction and maintenance of the exclusion itself as well as strategies used by them for a social valorization. This study was carried out at Casa de Saúde Padre Damião (CSPD), unit of Fundação Hospitalar do Estado de Minas Gerais (FHEMIG), in the city of Ubá. This qualitative study had as its target population, 53 patients named chronic patients interned for a long time and living in the institution with greater autonomy. Documental research and interviews were used as data collection tools and the social and economic profile of chronic patients and their families at Casa de Saúde Padre Damião, the social relationships made by the chronic patients and their families in the institutional environment and the processes of stigmatization and social exclusion of the chronic patients and their families in the reproduction and maintenance of social exclusion. Data were analyzed by descriptive statistics and speech analyses based on bibliographic references. Hansen‟s disease has been present in Brazil since the XVII century. As the etiologic agent of the disease is discovered, the construction of leprosarium in many states is supported, aiming at fighting and controlling the disease. Casa de Saúde Padre Damião was opened in 1945 to shelter and treat Hansen‟s disease patients by compulsory or spontaneous internations. Until the 1980s, Casa de Saúde Padre Damião had always used isolation and exclusion of people with leprosy as a treatment practice.After opening of this institution, aiming at social reinsertion of its interns, they did not leave CSPD, living there, though. Such patients, being interns for such a long time and in the need of permanent health care were characterized as chronic patients, receiving benefits and diverse concession from the institution. Because of being able to interact with the external environment, Casa de Saúde Padre Damião is also used as living target of many people, so a heterogeneous population emerged, causing the coexistence among the sick people (chronic patients) and the healthy people (not sick residents). Threatened due to the benefits and concessions received, chronic patients have an idea and rejection speech to the healthy residents, and the institution is still being pointed as a place mainly for the sick residents. So, they reproduce and keep the exclusion towards the healthy ones and towards themselves as they desire a place occupied by people with their conditions. Along with the excluding speech, they aim at strengthening their place, differentiated from the chronic patients by valuing and ranking the relationships at CSPD and by valuing a place for themselves, they aim at being recognized as citizens.