Desempenho funcional na síndrome de Down: relações com o suporte social e qualidade de vida de seus cuidadores

• Ano de defesa: 2013
• Autor(a) principal: Rezende, Luciana Krauss
• Orientador(a): Assis, Silvana Maria Blascovi de
• Banca de defesa: Carvalho, Sueli Galego de , Capovilla, Alessandra Gotuzo Seabra , Caromano, Fátima Aparecida , Stano, Rita de Cássia Magalhães Trindade
• Tipo de documento: Tese
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Presbiteriana Mackenzie
• Programa de Pós-Graduação: Distúrbios do Desenvolvimento
• Departamento: Psicologia
• País: BR
• Palavras-chave em Português: desempenho funcional; síndrome de Down; suporte social; cuidadores; qualidade de vida
• Palavras-chave em Inglês: functional performance; Down syndrome; social support; caregivers; quality of life
• Área do conhecimento CNPq: CNPQ::CIENCIAS DA SAUDE::FISIOTERAPIA E TERAPIA OCUPACIONAL
• Link de acesso: http://dspace.mackenzie.br/handle/10899/24524

Children with Down syndrome (DS) have neuro-sensory-motor dysfunctions that limit its functionality and social participation. The objective of this study was to investigate the relationships between the functional performance of children with SD and the perception of social support, quality of life and socio-economic level of their caretakers. Fifty caregivers of both genders, caregivers of children with SD, aged between six months and seven and a half years, were divided into two homogeneous sub-groups through the ages of 6 months to 4 years (n24) and over 4 years to 7 and a half years (n26), regular goers of specialized institutions. The instruments used were WHOQOL Brefs, social support Scale evaluation Inventory PEDI, socioeconomic level survey (ABEP) and identification of the survey participant. The results showed that the functional performance of children with functional skills regarding SD and caregiver assistance were different for the different tracks (groups). There is weak to moderate correlation between the scores of quality of life and social support. You can show a slight tendency to higher values of quality of life score for more social support values. To identify the existence of social support among caregivers of children with SD, did an analysis of the relationship between the number of people suportivas and perceived social support and we note that there is a correlation between weak and moderate between the two variables. With respect to the number of people believed to be suportivas, for the studied group caregivers mostly don't realize people thought to be suportivas. We observed that in relation to the level of satisfaction with social support, caregivers are mostly dissatisfied with the social support received. For indicators of domains that make up the index of quality of life, the highest correlation was found between the social and the psychological quality of life indicator. Negative correlation was observed between most of the indicators of quality of life and the socio-economic level and level of education, that is, it can be said that it was noted a lower quality of life for the worst socio-economic levels mainly considering the environmental domain. It was observed that in the worst socio-economic levels the level of education is less. It is concluded that works that identify forms of intervention that favour the social support for families who have children with SD should be the target of future investigations based on the premise that the social support, integrates public policies relating to inclusive education.