Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar

Detalhes bibliográficos
Ano de defesa: 2018
Autor(a) principal: Cesário, Luciana Maria Santos lattes
Orientador(a): Chariglione, Isabelle Patriciá Freitas Soares lattes
Banca de defesa: Não Informado pela instituição
Tipo de documento: Dissertação
Tipo de acesso: Acesso aberto
Idioma: por
Instituição de defesa: Universidade Católica de Brasília
Programa de Pós-Graduação: Programa Stricto Sensu em Gerontologia
Departamento: Escola de Saúde e Medicina
País: Brasil
Palavras-chave em Português:
Palavras-chave em Inglês:
Área do conhecimento CNPq:
Link de acesso: https://bdtd.ucb.br:8443/jspui/handle/tede/2448
Resumo: This work deals with the phenomenon of dementia syndromes and, specifically, the care that family members perform in the face of a diagnosis of dementia, because the family is the main institution that provides care to the elderly. The objective of this study was to verify how the changes occurred in the family when dealing with the constant exercise of caring for the elderly with dementia. The interview was carried out through a semi-structured interview, a sociodemographic questionnaire and a caregiver overload scale - Zarit Burden Interview, with caregivers frequently attended by the Centro Multidisciplinar do Idoso, Hospital Universitário de Brasília. Quantitative-qualitative analysis was also used, such as changes in family life and perceptions about care. To analyze statistically as qualitative answers of the questionnaire, the IRAMUTEQ software was used. At the first stage, the results were as follows: In the Descending Hierarchical Classification (DHC) there are four classes: Time (25%), Knowledge (33%), Consequences (22%) and Causes (19.4%); both in the Similitude Analysis (SA) and in the Word Cloud (WC), the word No prevailed. At present, in DHC, six classes, Current time (13.70%), General causes (15.70%), Time future (13.70%), Shares (17.60%), Consequences (23.50%). %) and immediate causes (15.70%). The SA and WC, continue to indicate more frequently the expression No. For quantitative measures, the software SPSS was used. The results pointed to those responsible for accountability in the majority of women (75%), wives (62%), main leaders (87.5%), in the age group of the elderly (60-75 years). Assessment of the contribution scored a moderate to severe phase (75%). It was concluded that caring for a relative with a diagnosis of dementia has direct implications for family caregivers, daughters, spouses, and especially family caregivers who directly face the aging process.
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spelling Chariglione, Isabelle Patriciá Freitas Soareshttp://lattes.cnpq.br/7556751200220301http://lattes.cnpq.br/9413807891550507Cesário, Luciana Maria Santos2018-08-09T14:16:50Z2018-06-07CESÁRIO, Luciana Maria Santos. Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar. 2018. 66 f. Dissertação (Programa Stricto Sensu em Gerontologia) - Universidade Católica de Brasília, Brasília, 2018.https://bdtd.ucb.br:8443/jspui/handle/tede/2448This work deals with the phenomenon of dementia syndromes and, specifically, the care that family members perform in the face of a diagnosis of dementia, because the family is the main institution that provides care to the elderly. The objective of this study was to verify how the changes occurred in the family when dealing with the constant exercise of caring for the elderly with dementia. The interview was carried out through a semi-structured interview, a sociodemographic questionnaire and a caregiver overload scale - Zarit Burden Interview, with caregivers frequently attended by the Centro Multidisciplinar do Idoso, Hospital Universitário de Brasília. Quantitative-qualitative analysis was also used, such as changes in family life and perceptions about care. To analyze statistically as qualitative answers of the questionnaire, the IRAMUTEQ software was used. At the first stage, the results were as follows: In the Descending Hierarchical Classification (DHC) there are four classes: Time (25%), Knowledge (33%), Consequences (22%) and Causes (19.4%); both in the Similitude Analysis (SA) and in the Word Cloud (WC), the word No prevailed. At present, in DHC, six classes, Current time (13.70%), General causes (15.70%), Time future (13.70%), Shares (17.60%), Consequences (23.50%). %) and immediate causes (15.70%). The SA and WC, continue to indicate more frequently the expression No. For quantitative measures, the software SPSS was used. The results pointed to those responsible for accountability in the majority of women (75%), wives (62%), main leaders (87.5%), in the age group of the elderly (60-75 years). Assessment of the contribution scored a moderate to severe phase (75%). It was concluded that caring for a relative with a diagnosis of dementia has direct implications for family caregivers, daughters, spouses, and especially family caregivers who directly face the aging process.Este estudo trata o fenômeno das síndromes demenciais e, especificamente, os cuidados que os familiares desempenham frente a um diagnóstico de demência, pois, a família é a principal instituição que presta assistência aos seus idosos. O objetivo deste trabalho foi verificar as mudanças ocorridas na família ao lidar com o exercício constante de cuidar do parente idoso com demência. A pesquisa foi realizada por meio de uma entrevista semiestruturada, um questionário sociodemográfico e a escala de sobrecarga de cuidador - Zarit Burden Interview, com familiares que frequentaram o Centro Multidisciplinar do Idoso, do Hospital Universitário de Brasília. Para tanto, foi realizada uma análise quantitativa-qualitativa, a fim de compreender as mudanças na vida do familiar cuidador e as percepções sobre os cuidados. Para analisar estatisticamente as respostas qualitativas do questionário, foi utilizado o software IRAMUTEQ. Onde, no primeiro momento, os resultados foram os seguintes: na Classificação Hierárquica Descendente (CHD) apresentou quatro classes, Tempo (25%), Conhecimento (33%), Consequências (22%) e Causas (19,4%); Tanto na Análise de Similitude (AS) como na Nuvem de Palavras (NP), prevaleceu a palavra Não. No segundo momento, na CHD apresentou seis classes, Tempo atual (13,70%), Causas gerais (15,70%), Tempo futuro (13,70%), Ações (17,60%), Consequências (23,50%) e Causas imediatas (15,70%). A AS e a NP, permaneceram referindo com maior frequência a palavra Não. Para as medidas quantitativas, o software SPSS foi utilizado. Os resultados apontaram que os familiares cuidadores são, na maioria, mulheres (75%), esposas (62%), cuidadoras principais (87,5%), na faixa etária de idosos (60-75 anos). A avaliação da sobrecarga pontuou a fase de moderada à grave (75%). Concluiu-se que cuidar de um parente com diagnóstico de demência traz implicações diretas aos familiares cuidadores, filhas(os), espoas(os), especialmente aos familiares cuidadores que enfrentam diretamente o processo de envelhecimento.Submitted by Sara Ribeiro (sara.ribeiro@ucb.br) on 2018-08-09T14:16:23Z No. of bitstreams: 1 LucianaMariaSantosCesarioDissertacao2018.pdf: 1387598 bytes, checksum: 22f206fdd98553b4934b2dd351addc56 (MD5)Approved for entry into archive by Sara Ribeiro (sara.ribeiro@ucb.br) on 2018-08-09T14:16:50Z (GMT) No. of bitstreams: 1 LucianaMariaSantosCesarioDissertacao2018.pdf: 1387598 bytes, checksum: 22f206fdd98553b4934b2dd351addc56 (MD5)Made available in DSpace on 2018-08-09T14:16:50Z (GMT). No. of bitstreams: 1 LucianaMariaSantosCesarioDissertacao2018.pdf: 1387598 bytes, checksum: 22f206fdd98553b4934b2dd351addc56 (MD5) Previous issue date: 2018-06-07application/pdfhttps://bdtd.ucb.br:8443/jspui/retrieve/5874/LucianaMariaSantosCesarioDissertacao2018.pdf.jpgporUniversidade Católica de BrasíliaPrograma Stricto Sensu em GerontologiaUCBBrasilEscola de Saúde e MedicinaFamíliaCuidadorDemênciaAcolhimentoCaregiverDementiaFamilyCaringCNPQ::CIENCIAS DA SAUDEDiagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiarinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisinfo:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UCBinstname:Universidade Católica de Brasília (UCB)instacron:UCBLICENSElicense.txtlicense.txttext/plain; charset=utf-81905https://bdtd.ucb.br:8443/jspui/bitstream/tede/2448/1/license.txt75558dcf859532757239878b42f1c2c7MD51ORIGINALLucianaMariaSantosCesarioDissertacao2018.pdfLucianaMariaSantosCesarioDissertacao2018.pdfapplication/pdf1387598https://bdtd.ucb.br:8443/jspui/bitstream/tede/2448/2/LucianaMariaSantosCesarioDissertacao2018.pdf22f206fdd98553b4934b2dd351addc56MD52TEXTLucianaMariaSantosCesarioDissertacao2018.pdf.txtLucianaMariaSantosCesarioDissertacao2018.pdf.txttext/plain133793https://bdtd.ucb.br:8443/jspui/bitstream/tede/2448/3/LucianaMariaSantosCesarioDissertacao2018.pdf.txt1c9241a545cb439b535be9d63ea7b08cMD53THUMBNAILLucianaMariaSantosCesarioDissertacao2018.pdf.jpgLucianaMariaSantosCesarioDissertacao2018.pdf.jpgimage/jpeg5308https://bdtd.ucb.br:8443/jspui/bitstream/tede/2448/4/LucianaMariaSantosCesarioDissertacao2018.pdf.jpg27f2e9875f54123641bde3c9c8375b4bMD54tede/24482018-08-10 04:07:15.717oai:bdtd.ucb.br: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 Digital de Teses e Dissertaçõeshttps://bdtd.ucb.br:8443/jspui/PRIhttps://bdtd.ucb.br:8443/oai/requestsdi@ucb.bropendoar:47812018-08-10T04:07:15Biblioteca Digital de Teses e Dissertações da UCB - Universidade Católica de Brasília (UCB)false
dc.title.por.fl_str_mv Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar
title Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar
spellingShingle Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar
Cesário, Luciana Maria Santos
Família
Cuidador
Demência
Acolhimento
Caregiver
Dementia
Family
Caring
CNPQ::CIENCIAS DA SAUDE
title_short Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar
title_full Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar
title_fullStr Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar
title_full_unstemmed Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar
title_sort Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar
author Cesário, Luciana Maria Santos
author_facet Cesário, Luciana Maria Santos
author_role author
dc.contributor.advisor1.fl_str_mv Chariglione, Isabelle Patriciá Freitas Soares
dc.contributor.advisor1Lattes.fl_str_mv http://lattes.cnpq.br/7556751200220301
dc.contributor.authorLattes.fl_str_mv http://lattes.cnpq.br/9413807891550507
dc.contributor.author.fl_str_mv Cesário, Luciana Maria Santos
contributor_str_mv Chariglione, Isabelle Patriciá Freitas Soares
dc.subject.por.fl_str_mv Família
Cuidador
Demência
Acolhimento
topic Família
Cuidador
Demência
Acolhimento
Caregiver
Dementia
Family
Caring
CNPQ::CIENCIAS DA SAUDE
dc.subject.eng.fl_str_mv Caregiver
Dementia
Family
Caring
dc.subject.cnpq.fl_str_mv CNPQ::CIENCIAS DA SAUDE
description This work deals with the phenomenon of dementia syndromes and, specifically, the care that family members perform in the face of a diagnosis of dementia, because the family is the main institution that provides care to the elderly. The objective of this study was to verify how the changes occurred in the family when dealing with the constant exercise of caring for the elderly with dementia. The interview was carried out through a semi-structured interview, a sociodemographic questionnaire and a caregiver overload scale - Zarit Burden Interview, with caregivers frequently attended by the Centro Multidisciplinar do Idoso, Hospital Universitário de Brasília. Quantitative-qualitative analysis was also used, such as changes in family life and perceptions about care. To analyze statistically as qualitative answers of the questionnaire, the IRAMUTEQ software was used. At the first stage, the results were as follows: In the Descending Hierarchical Classification (DHC) there are four classes: Time (25%), Knowledge (33%), Consequences (22%) and Causes (19.4%); both in the Similitude Analysis (SA) and in the Word Cloud (WC), the word No prevailed. At present, in DHC, six classes, Current time (13.70%), General causes (15.70%), Time future (13.70%), Shares (17.60%), Consequences (23.50%). %) and immediate causes (15.70%). The SA and WC, continue to indicate more frequently the expression No. For quantitative measures, the software SPSS was used. The results pointed to those responsible for accountability in the majority of women (75%), wives (62%), main leaders (87.5%), in the age group of the elderly (60-75 years). Assessment of the contribution scored a moderate to severe phase (75%). It was concluded that caring for a relative with a diagnosis of dementia has direct implications for family caregivers, daughters, spouses, and especially family caregivers who directly face the aging process.
publishDate 2018
dc.date.accessioned.fl_str_mv 2018-08-09T14:16:50Z
dc.date.issued.fl_str_mv 2018-06-07
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dc.identifier.citation.fl_str_mv CESÁRIO, Luciana Maria Santos. Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar. 2018. 66 f. Dissertação (Programa Stricto Sensu em Gerontologia) - Universidade Católica de Brasília, Brasília, 2018.
dc.identifier.uri.fl_str_mv https://bdtd.ucb.br:8443/jspui/handle/tede/2448
identifier_str_mv CESÁRIO, Luciana Maria Santos. Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar. 2018. 66 f. Dissertação (Programa Stricto Sensu em Gerontologia) - Universidade Católica de Brasília, Brasília, 2018.
url https://bdtd.ucb.br:8443/jspui/handle/tede/2448
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