Correlação entre padrão de sono e sobrecarga de familiares de crianças e adolescentes com condições crônicas hospitalizados

• Ano de defesa: 2023
• Autor(a) principal: Abreu, Madalena Paulos
• Outros Autores: [e-mail]
• Orientador(a): Nunes, Michelle Darezzo Rodrigues
• Banca de defesa: Nascimento, Lucila Castanheira , Pacheco, Sandra Teixeira de Araújo
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade do Estado do Rio de Janeiro
• Programa de Pós-Graduação: Programa de Pós-Graduação em Enfermagem
• Departamento: Centro Biomédico::Faculdade de Enfermagem
• País: Brasil
• Palavras-chave em Português: Família; Cuidadores; Criança; Adolescente; Doença crônica; Transtornos do Sono-Vigília; Fardo do Cuidador
• Palavras-chave em Inglês: Family; Caregivers; Child; Adolescents; Chronic disease; Sleep wake disorders; Caregiver burden
• Área do conhecimento CNPq: CIENCIAS DA SAUDE::ENFERMAGEM::ENFERMAGEM PEDIATRICA
• Link de acesso: http://www.bdtd.uerj.br/handle/1/20392

Introduction: Chronic conditions are one of the biggest public health problems in Brazil and in the world, with impacts that permeate the occurrence of premature deaths, loss of quality of life, disabilities and high economic costs for society and systems. of health. Its presence in the family environment can compromise the health of some or all family members. Thus, changes in lifestyle and the overload of family members of children and adolescents with chronic health conditions can induce changes in their sleep pattern, which puts them at risk for the development of health problems and can threaten their ability to of long-term care. Objective: To assess and correlate the sleep pattern and burden of family members of hospitalized children and adolescents with chronic conditions. Objective: To assess and correlate the sleep pattern and burden of family members of hospitalized children and adolescents with chronic conditions. Method: Quantitative, descriptive and cross-sectional study, with a convenience sample of 52 family members of children and adolescents aged zero to 18 years old with chronic health conditions. The instrument used to assess the sleep pattern was the ActiGraph, a clock-shaped device that allows the collection of various data regarding the sleep pattern. To assess the burden on the family member, the Zarit Burden Interview scale is used, with a validated Brazilian version and good internal consistency. For data analysis, specific software for ActiGraph data analysis, Action-W, was used. With these data, a bank was created in Excel spreadsheet software (Microsoft Office), for the coding of variables, with double typing performed by different researchers. Subsequently, the data were exported to the JASP statistical software, version 0.17.1, to carry out the appropriate statistical tests. Results: The results showed that sleep duration was, on average, 3.8 ± 1.1 hours. Overwhelm scores of 73% of participants were moderate to severe. Although the relative's sleep was impaired and the burden scores ranged from medium to severe, no correlation was found between the two variables. Conclusion: The data from this research showed that family members of hospitalized children and adolescents with chronic conditions have impaired sleep and medium to severe scores of care overload. It is essential, on the part of the nurse, to evaluate and plan nursing care in order to minimize sleep disturbances and burden on family members. Future studies with a larger number of participants are needed.