Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico

Detalhes bibliográficos
Ano de defesa: 2023
Autor(a) principal: Castro, Lorena Gomes Freitas de
Orientador(a): Lima, Geralda de Oliveira Santos
Banca de defesa: Não Informado pela instituição
Tipo de documento: Tese
Tipo de acesso: Acesso aberto
Idioma: por
Instituição de defesa: Não Informado pela instituição
Programa de Pós-Graduação: Pós-Graduação em Letras
Departamento: Não Informado pela instituição
País: Não Informado pela instituição
Palavras-chave em Português:
Palavras-chave em Inglês:
Link de acesso: https://ri.ufs.br/jspui/handle/riufs/21515
Resumo: This work proposes a displacement of the neurotypical perspective both in comprehension and in academic writing, bringing to light reports of autistic people after late diagnosis, in favor of neurodivergent subjectivity (BENEDETTO, 2020; ORTEGA, 2008). Our research is aligned with a socio-cognitive-interactional perspective of the functionalist language of the studies, since it presupposes the language in interaction, in functioning and as a result of principles that can exert significant changes in the effects of meaning, namely, the social, cognitive, cultural, identity contexts, among others. From the theoretical scope of Textual Linguistics in contemporary times (KOCH, 2009; MARCUSCHI, 2012; CUSTÓDIO FILHO, 2009; CAVALCANTE; CUSTÓDIO FILHO; BRITO, 2014; CAPISTRANO JÚNIOR; LINS; ELIAS, 2017; LIMA; CASTRO, 2021), autobiographical reports have been analyzed of autistic people who, coming from late diagnoses (between adolescence and adulthood), can constitute discursive tools to combat prejudice and oppression, to promote the recognition of neurodiversity and the development of these identities (BENEDETTO, 2020; LACERDA, 2017; DONVAN; ZUCKER; 2017; GRANDIN; PANEK, 2021; BERNIER; DAWSON; NIGG, 2021). To do so, the phenomenon of referencing through the (re)elaboration of discourse objects is discussed (MONDADA; DUBOIS, 2013), which point to the referential construction of atypical (id)entities, in addition to a before-after continuum in the context of this diagnosis. This means that these (id)entities are (re)constructed, indicating places of neurodissidence and considering, in this process, all there was before as the absence of this diagnosis and that came after as the experience of access to the late diagnosis of ASD. The sample contains materials that were collected exclusively through a virtual questionnaire (google forms). Our interest in the absence of greater knowledge about this topic has been justified. For this, we have to analyze, as a general goal, the way in which the (re)construction of atypical (id)entities occurs from autobiographical reports of autistic adults with late diagnosis, and how specifically: (1) to discuss the contextual social markers of the participants through data obtained through a digital form; (2) to identify and describe discourse objects in reports, taking into account neurodiversity and (3) to analyze autobiographical reports written from the use of referential processes and, above all, those of the deictic field. In addition to these aims, we defend the hypothesis that through the referential analysis of these reports, we confirm dissident traits, deconstructing the ableism questioning “but you don't look like an autist!”. We reiterate, therefore, that neurodissident reports of autistic people with late diagnosis provide the (re)cognition of the neurodiversity of these (id)entities. Regarding the atypical final grades, these ideas are also supported by the scientific recognition of my own diagnosis, of my before/after, identifying the structural ableism. We also point out the cathartic power of the reports and the importance of a bellhookian love ethic in favor of anti-ableist literacy.
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spelling Castro, Lorena Gomes Freitas deLima, Geralda de Oliveira Santos2025-04-01T19:28:25Z2025-04-01T19:28:25Z2023-08-28CASTRO, Lorena Gomes Freitas de. Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico. 2023. 197 f. Tese (Doutorado em Letras) — Universidade Federal de Sergipe, São Cristóvão, 2023.https://ri.ufs.br/jspui/handle/riufs/21515This work proposes a displacement of the neurotypical perspective both in comprehension and in academic writing, bringing to light reports of autistic people after late diagnosis, in favor of neurodivergent subjectivity (BENEDETTO, 2020; ORTEGA, 2008). Our research is aligned with a socio-cognitive-interactional perspective of the functionalist language of the studies, since it presupposes the language in interaction, in functioning and as a result of principles that can exert significant changes in the effects of meaning, namely, the social, cognitive, cultural, identity contexts, among others. From the theoretical scope of Textual Linguistics in contemporary times (KOCH, 2009; MARCUSCHI, 2012; CUSTÓDIO FILHO, 2009; CAVALCANTE; CUSTÓDIO FILHO; BRITO, 2014; CAPISTRANO JÚNIOR; LINS; ELIAS, 2017; LIMA; CASTRO, 2021), autobiographical reports have been analyzed of autistic people who, coming from late diagnoses (between adolescence and adulthood), can constitute discursive tools to combat prejudice and oppression, to promote the recognition of neurodiversity and the development of these identities (BENEDETTO, 2020; LACERDA, 2017; DONVAN; ZUCKER; 2017; GRANDIN; PANEK, 2021; BERNIER; DAWSON; NIGG, 2021). To do so, the phenomenon of referencing through the (re)elaboration of discourse objects is discussed (MONDADA; DUBOIS, 2013), which point to the referential construction of atypical (id)entities, in addition to a before-after continuum in the context of this diagnosis. This means that these (id)entities are (re)constructed, indicating places of neurodissidence and considering, in this process, all there was before as the absence of this diagnosis and that came after as the experience of access to the late diagnosis of ASD. The sample contains materials that were collected exclusively through a virtual questionnaire (google forms). Our interest in the absence of greater knowledge about this topic has been justified. For this, we have to analyze, as a general goal, the way in which the (re)construction of atypical (id)entities occurs from autobiographical reports of autistic adults with late diagnosis, and how specifically: (1) to discuss the contextual social markers of the participants through data obtained through a digital form; (2) to identify and describe discourse objects in reports, taking into account neurodiversity and (3) to analyze autobiographical reports written from the use of referential processes and, above all, those of the deictic field. In addition to these aims, we defend the hypothesis that through the referential analysis of these reports, we confirm dissident traits, deconstructing the ableism questioning “but you don't look like an autist!”. We reiterate, therefore, that neurodissident reports of autistic people with late diagnosis provide the (re)cognition of the neurodiversity of these (id)entities. Regarding the atypical final grades, these ideas are also supported by the scientific recognition of my own diagnosis, of my before/after, identifying the structural ableism. We also point out the cathartic power of the reports and the importance of a bellhookian love ethic in favor of anti-ableist literacy.Este trabalho propõe um deslocamento da perspectiva neurotípica tanto na compreensão, quanto na escrita acadêmica, trazendo à luz relatos de autistas após diagnóstico tardio, em prol da subjetividade neurodivergente (BENEDETTO, 2020; ORTEGA, 2008). Nossa pesquisa está alinhada a uma perspectiva sociocognitivo-interacional da linguagem de caráter funcionalista dos estudos, uma vez que pressupõe a língua em interação, em funcionamento e em decorrência de princípios os quais possam exercer sobre ela alterações significativas de efeitos de sentido, a saber, os contextos social, cognitivo, cultural, identitário, dentre outros. A partir do escopo teórico da Linguística Textual na contemporaneidade (KOCH, 2009; MARCUSCHI, 2012; CUSTÓDIO FILHO, 2009; CAVALCANTE; CUSTÓDIO FILHO; BRITO, 2014; CAPISTRANO JÚNIOR; LINS; ELIAS, 2017; LIMA; CASTRO, 2021), analisamos relatos autobiográficos de pessoas autistas que vindas de diagnósticos tardios (entre a adolescência e fase adulta) podem constituir ferramentas discursivas de combate ao preconceito, à opressão, promover o reconhecimento da neurodiversidade e o desenvolvimento dessas identidades (BENEDETTO, 2020; LACERDA, 2017; DONVAN; ZUCKER; 2017; GRANDIN; PANEK, 2021; BERNIER; DAWSON; NIGG, 2021). Para tanto, discutimos o fenômeno da referenciação mediante a (re)elaboração de objetos de discurso (MONDADA; DUBOIS, 2013), os quais apontam para a construção referencial de (id)entidades atípicas, além de um continuum antes-depois diante do contexto desse diagnóstico. Isso quer dizer que essas (id)entidades (re)constroem-se indicando lugares de neurodissidências e considerando, nesse processo, o antes como a ausência desse diagnóstico e o depois como a experiência de acesso ao diagnóstico tardio de TEA. A amostra conta com materiais que foram coletados exclusivamente através de questionário virtual (google forms). Justificamos nosso interesse diante da ausência de maiores conhecimentos a respeito dessa temática. Para isso, temos como objetivo geral analisar o modo como ocorre a (re)construção de (id)entidades atípicas a partir de relatos autobiográficos de autistas adultos com diagnóstico tardio e como específicos: (1) discutir os marcadores sociais contextuais dos participantes através de dados obtidos por meio de formulário digital; (2) identificar e descrever objetos de discurso em relatos, levando em consideração a neurodiversidade e (3) analisar os relatos autobiográficos escritos a partir do uso de processos referenciais e, sobretudo, os do campo dêitico. Para além desses objetivos, defendemos a hipótese de que através de análise referencial desses relatos, confirmamos traços dissidentes, desconstruindo o questionamento capacitista “mas você não tem cara de autista!”. Reiteramos, portanto, que relatos neurodissidentes de autistas com diagnóstico tardio proporcionam o (re)conhecimento da neurodiversidade dessas (id)entidades. Sobre as notas finais atípicas, essas ideias se sustentam também a partir do reconhecimento científico do meu próprio diagnóstico, do meu antes/depois, identificando a dêixis discursiva como prova do capacitismo estrutural. Sinalizamos ainda o poder catártico dos relatos e a importância de uma ética amorosa bellhookiana em prol do letramento anticapacitista.Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPESSão CristóvãoporAutobiografiaTranstorno do Espectro AutistaDiagnósticoIdentidade socialLinguísticaNeurociênciaDiagnóstico tardioRelatos autobiográficosTeoria da referenciaçãoCampo dêiticoAutistic Spectrum DisorderLate diagnosisAutobiographical reportsReferencing theoryDeitic fieldMas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêiticoinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisPós-Graduação em LetrasUniversidade Federal de Sergipe (UFS)reponame:Repositório Institucional da UFSinstname:Universidade Federal de Sergipe (UFS)instacron:UFSinfo:eu-repo/semantics/openAccessLICENSElicense.txtlicense.txttext/plain; charset=utf-81475https://ri.ufs.br/jspui/bitstream/riufs/21515/1/license.txt098cbbf65c2c15e1fb2e49c5d306a44cMD51ORIGINALLORENA_GOMES_FREITAS_CASTRO.pdfLORENA_GOMES_FREITAS_CASTRO.pdfapplication/pdf5835117https://ri.ufs.br/jspui/bitstream/riufs/21515/2/LORENA_GOMES_FREITAS_CASTRO.pdf508989cf58ec8ba6d615b8171d7045abMD52riufs/215152025-04-01 21:38:27.513oai:oai:ri.ufs.br:repo_01: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Repositório InstitucionalPUBhttps://ri.ufs.br/oai/requestrepositorio@academico.ufs.bropendoar:2025-04-02T00:38:27Repositório Institucional da UFS - Universidade Federal de Sergipe (UFS)false
dc.title.pt_BR.fl_str_mv Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico
title Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico
spellingShingle Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico
Castro, Lorena Gomes Freitas de
Autobiografia
Transtorno do Espectro Autista
Diagnóstico
Identidade social
Linguística
Neurociência
Diagnóstico tardio
Relatos autobiográficos
Teoria da referenciação
Campo dêitico
Autistic Spectrum Disorder
Late diagnosis
Autobiographical reports
Referencing theory
Deitic field
title_short Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico
title_full Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico
title_fullStr Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico
title_full_unstemmed Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico
title_sort Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico
author Castro, Lorena Gomes Freitas de
author_facet Castro, Lorena Gomes Freitas de
author_role author
dc.contributor.author.fl_str_mv Castro, Lorena Gomes Freitas de
dc.contributor.advisor1.fl_str_mv Lima, Geralda de Oliveira Santos
contributor_str_mv Lima, Geralda de Oliveira Santos
dc.subject.por.fl_str_mv Autobiografia
Transtorno do Espectro Autista
Diagnóstico
Identidade social
Linguística
Neurociência
Diagnóstico tardio
Relatos autobiográficos
Teoria da referenciação
Campo dêitico
topic Autobiografia
Transtorno do Espectro Autista
Diagnóstico
Identidade social
Linguística
Neurociência
Diagnóstico tardio
Relatos autobiográficos
Teoria da referenciação
Campo dêitico
Autistic Spectrum Disorder
Late diagnosis
Autobiographical reports
Referencing theory
Deitic field
dc.subject.eng.fl_str_mv Autistic Spectrum Disorder
Late diagnosis
Autobiographical reports
Referencing theory
Deitic field
description This work proposes a displacement of the neurotypical perspective both in comprehension and in academic writing, bringing to light reports of autistic people after late diagnosis, in favor of neurodivergent subjectivity (BENEDETTO, 2020; ORTEGA, 2008). Our research is aligned with a socio-cognitive-interactional perspective of the functionalist language of the studies, since it presupposes the language in interaction, in functioning and as a result of principles that can exert significant changes in the effects of meaning, namely, the social, cognitive, cultural, identity contexts, among others. From the theoretical scope of Textual Linguistics in contemporary times (KOCH, 2009; MARCUSCHI, 2012; CUSTÓDIO FILHO, 2009; CAVALCANTE; CUSTÓDIO FILHO; BRITO, 2014; CAPISTRANO JÚNIOR; LINS; ELIAS, 2017; LIMA; CASTRO, 2021), autobiographical reports have been analyzed of autistic people who, coming from late diagnoses (between adolescence and adulthood), can constitute discursive tools to combat prejudice and oppression, to promote the recognition of neurodiversity and the development of these identities (BENEDETTO, 2020; LACERDA, 2017; DONVAN; ZUCKER; 2017; GRANDIN; PANEK, 2021; BERNIER; DAWSON; NIGG, 2021). To do so, the phenomenon of referencing through the (re)elaboration of discourse objects is discussed (MONDADA; DUBOIS, 2013), which point to the referential construction of atypical (id)entities, in addition to a before-after continuum in the context of this diagnosis. This means that these (id)entities are (re)constructed, indicating places of neurodissidence and considering, in this process, all there was before as the absence of this diagnosis and that came after as the experience of access to the late diagnosis of ASD. The sample contains materials that were collected exclusively through a virtual questionnaire (google forms). Our interest in the absence of greater knowledge about this topic has been justified. For this, we have to analyze, as a general goal, the way in which the (re)construction of atypical (id)entities occurs from autobiographical reports of autistic adults with late diagnosis, and how specifically: (1) to discuss the contextual social markers of the participants through data obtained through a digital form; (2) to identify and describe discourse objects in reports, taking into account neurodiversity and (3) to analyze autobiographical reports written from the use of referential processes and, above all, those of the deictic field. In addition to these aims, we defend the hypothesis that through the referential analysis of these reports, we confirm dissident traits, deconstructing the ableism questioning “but you don't look like an autist!”. We reiterate, therefore, that neurodissident reports of autistic people with late diagnosis provide the (re)cognition of the neurodiversity of these (id)entities. Regarding the atypical final grades, these ideas are also supported by the scientific recognition of my own diagnosis, of my before/after, identifying the structural ableism. We also point out the cathartic power of the reports and the importance of a bellhookian love ethic in favor of anti-ableist literacy.
publishDate 2023
dc.date.issued.fl_str_mv 2023-08-28
dc.date.accessioned.fl_str_mv 2025-04-01T19:28:25Z
dc.date.available.fl_str_mv 2025-04-01T19:28:25Z
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dc.identifier.uri.fl_str_mv https://ri.ufs.br/jspui/handle/riufs/21515
identifier_str_mv CASTRO, Lorena Gomes Freitas de. Mas você não tem cara de autista: relato autobiográfico, diagnóstico tardio e campo dêitico. 2023. 197 f. Tese (Doutorado em Letras) — Universidade Federal de Sergipe, São Cristóvão, 2023.
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