As relações de cuidado em saúde mental de pessoas com transtorno mental grave e persistente e seus familiares

• Ano de defesa: 2025
• Autor(a) principal: Martins, Christian Claus
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade de Passo Fundo; Brasil; UPF; Programa de Pós-Graduação em Envelhecimento Humano; Instituto da Saúde
• Palavras-chave em Português: Envelhecimento; Família - Saúde mental; Psiquiatria; Doenças mentais; Ciências da Saúde
• Link de acesso: https://repositorio.upf.br/handle/123456789/9637

Over time, the issue of mental disorders has been marked by stigmatization and intolerance toward those considered different from established social norms. Since the Psychiatric Reform, significant progress has been made in the mental health care model, enabling people with severe and persistent mental disorders to access dignified treatment. In addition to the suffering caused to the individual, their family is affected and must deal with a set of challenges, as the family is one of the key actors in the relationship of care and support for individuals with mental disorders. This study sought to understand the caregiving relationships in the aging process among people with severe and persistent mental illness and their family members, as well as their social support network. This study was conducted through a descriptive, qualitative field study using semi-structured individual interviews and the network map instrument proposed by Sluzki (1997). The research sample consisted of 12 individuals: six with mental illness who were users of the Psychosocial Care Center (CAPS) and six family members, one from each user participating in the study. The research resulted in two articles. The first, titled "Care Logics in the Context of Psychiatric Reform: Care Relationships of People with Mental Disorders and Their Families," aimed to understand care relationships in the aging process among people with severe and persistent mental disorders and their families. It revealed the dynamism present in the care interactions that make up the daily lives of these individuals and their relationship with mental health treatment. It demonstrated that the care relationships between individuals with mental disorders and their families can be understood from the perspective of the difficulties arising from mental illness, but also from the emotional bond present in these relationships. The results also indicate the importance of CAPS and reveal insecurities related to the future and aging of these subjects. The second article, entitled "Cartography of Support: The Significant Social Network of Users and Families of a CAPS," sought to understand the supportive relationships of users with mental disorders and their families based on their significant social network maps. The results reveal that the composition of the social networks of users with mental disorders and their families is dynamic, changing according to the context they experience, and they may rely on greater or lesser family and social support. It is evident that living with intense and chronic mental illness produces strain on the social networks of users and families, weakening their relationships and social participation. The data point to family as the primary supportive relationship for users and also indicate the CAPS as a highly important space for their care. However, they also highlight familism and the need to strengthen support networks for effective mental health care. In conclusion, we reiterate the need for public mental health policies to include families in care actions, promote spaces for social reintegration, and build mechanisms to strengthen support networks for mental health service users and their families.