Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma
Ano de defesa: | 2019 |
---|---|
Autor(a) principal: | |
Orientador(a): | |
Banca de defesa: | |
Tipo de documento: | Tese |
Tipo de acesso: | Acesso aberto |
Idioma: | por |
Instituição de defesa: |
Pontif?cia Universidade Cat?lica do Rio Grande do Sul
|
Programa de Pós-Graduação: |
Programa de P?s-Gradua??o em Medicina/Pediatria e Sa?de da Crian?a
|
Departamento: |
Escola de Medicina
|
País: |
Brasil
|
Palavras-chave em Português: | |
Palavras-chave em Inglês: | |
Área do conhecimento CNPq: | |
Link de acesso: | http://tede2.pucrs.br/tede2/handle/tede/9006 |
Resumo: | Introduction: Currently, asthma is still a poorly understood disease that causes great impact on the lives of patients and relatives. In asthmatic children, parents and caregivers are responsible for the management of the disease and it is essential that they have adequate levels of health literacy and knowledge in asthma. Our group believes that knowledge of asthma and health literacy of caregivers of children with the diagnosis of the disease is still low in the southern region of Brazil, and this study corroborates a better understanding of this panorama. Objective: To evaluate the level of knowledge in asthma and health literacy of caregivers of children and adolescents diagnosed with the disease, together with asthma control, quality of life and adherence to treatment. Methods: This is a cross-sectional, descriptive and analytical study conducted in two referral centers in pediatric pulmonology in southern Brazil, between November 2015 and April 2018, where parents and caregivers of children and adolescents with medical diagnosis of asthma. We included parents and caregivers with a minimum age of 18 years, who were regularly with the patient, that is, living with the child/adolescent or caring for periods exceeding 3 days (72 hours) per week, as well as those who kept me direct contact between Child, disease and treatment, defined as: Knowing the prescribed medical treatment, applying the medication and having received basic guidance on the disease. Children and adolescents should be between 1 and 17 years old and be in outpatient follow-up. Caregivers who had cognitive problems were excluded, as well as those patients with cognitive, motor or other chronic diseases (except rhinitis and atopic dermatitis). The main questionnaires applied to caregivers were: a) socio-demographic and economic classification (CCEB); b) Short Assessment of Health Literacy for Portuguese-Speaking Adults (SAHLPA-18), to evaluate the health literacy; c) Question?rio de Conhecimento em Asma Pedi?trica (Q-CAP); d) Pediatric Asthma Parent Quality of Life Questionnaire (PACQLQ); and e) Global Initiative for Asthma (GINA), to assess asthma control. In the patients, the questionnaires were applied Morisky Medication Adherence Scales (MMAS?8) and the Pediatric Asthma Quality of Life Questionnair (PAQLQ). For statistical purposes, Student t test, Person Chi-square test and Binary Logistic Regression test were used. The significance was 5% (p < 0.05). Results: A total of 125 parents/caregivers were included in the study, with a mean age of 35.7 ? 9.2 years, 65 (52%) With full high school, 100 (80%) belonging to economic class C, and mothers were majority during consultations (n = 101; 80.8%). In relation to the patients, 125 children and adolescents were included, 64 (51.2%) males and mean age of 6,68 ? 3,98, of these, 91 (72.8%) were not with the disease fully controlled. Regarding adherence to treatment, a sub-sample was analyzed with 59 (47.2%) patients who answered the MMAS-8 questionnaire, and none of them (n = 0; 0%) showed high adherence to treatment. Still, almost all (n = 54; 91, 5%) had low adherence. Only 51 (40.8%) of parents and caregivers had adequate levels of health literacy (SAHLPA-18). In addition, 117 (94.4%) parents presented inadequate levels of specific knowledge in asthma (Q-CAP). Quality of life was also affected by low asthma control, especially in the areas of activity limitation and emotional function. Conclusion: However, it can be observed that the population analyzed presented levels of in health literacy and knowledge in unsatisfactory asthma. Also, the levels of disease control and adherence to treatment were low and may be associated with quality of life levels. It is hoped that the health education levels of caregivers of children with asthma are adequate for the management of the disease to be effective. |
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Stein, Renato Tetelbomhttp://lattes.cnpq.br/8128743330371501http://lattes.cnpq.br/3580624128931873Cardoso, Thiago de Araujo2019-11-06T12:32:20Z2019-07-09http://tede2.pucrs.br/tede2/handle/tede/9006Introduction: Currently, asthma is still a poorly understood disease that causes great impact on the lives of patients and relatives. In asthmatic children, parents and caregivers are responsible for the management of the disease and it is essential that they have adequate levels of health literacy and knowledge in asthma. Our group believes that knowledge of asthma and health literacy of caregivers of children with the diagnosis of the disease is still low in the southern region of Brazil, and this study corroborates a better understanding of this panorama. Objective: To evaluate the level of knowledge in asthma and health literacy of caregivers of children and adolescents diagnosed with the disease, together with asthma control, quality of life and adherence to treatment. Methods: This is a cross-sectional, descriptive and analytical study conducted in two referral centers in pediatric pulmonology in southern Brazil, between November 2015 and April 2018, where parents and caregivers of children and adolescents with medical diagnosis of asthma. We included parents and caregivers with a minimum age of 18 years, who were regularly with the patient, that is, living with the child/adolescent or caring for periods exceeding 3 days (72 hours) per week, as well as those who kept me direct contact between Child, disease and treatment, defined as: Knowing the prescribed medical treatment, applying the medication and having received basic guidance on the disease. Children and adolescents should be between 1 and 17 years old and be in outpatient follow-up. Caregivers who had cognitive problems were excluded, as well as those patients with cognitive, motor or other chronic diseases (except rhinitis and atopic dermatitis). The main questionnaires applied to caregivers were: a) socio-demographic and economic classification (CCEB); b) Short Assessment of Health Literacy for Portuguese-Speaking Adults (SAHLPA-18), to evaluate the health literacy; c) Question?rio de Conhecimento em Asma Pedi?trica (Q-CAP); d) Pediatric Asthma Parent Quality of Life Questionnaire (PACQLQ); and e) Global Initiative for Asthma (GINA), to assess asthma control. In the patients, the questionnaires were applied Morisky Medication Adherence Scales (MMAS?8) and the Pediatric Asthma Quality of Life Questionnair (PAQLQ). For statistical purposes, Student t test, Person Chi-square test and Binary Logistic Regression test were used. The significance was 5% (p < 0.05). Results: A total of 125 parents/caregivers were included in the study, with a mean age of 35.7 ? 9.2 years, 65 (52%) With full high school, 100 (80%) belonging to economic class C, and mothers were majority during consultations (n = 101; 80.8%). In relation to the patients, 125 children and adolescents were included, 64 (51.2%) males and mean age of 6,68 ? 3,98, of these, 91 (72.8%) were not with the disease fully controlled. Regarding adherence to treatment, a sub-sample was analyzed with 59 (47.2%) patients who answered the MMAS-8 questionnaire, and none of them (n = 0; 0%) showed high adherence to treatment. Still, almost all (n = 54; 91, 5%) had low adherence. Only 51 (40.8%) of parents and caregivers had adequate levels of health literacy (SAHLPA-18). In addition, 117 (94.4%) parents presented inadequate levels of specific knowledge in asthma (Q-CAP). Quality of life was also affected by low asthma control, especially in the areas of activity limitation and emotional function. Conclusion: However, it can be observed that the population analyzed presented levels of in health literacy and knowledge in unsatisfactory asthma. Also, the levels of disease control and adherence to treatment were low and may be associated with quality of life levels. It is hoped that the health education levels of caregivers of children with asthma are adequate for the management of the disease to be effective.Introdu??o: Atualmente, a asma ainda ? uma doen?a pouco compreendida e que causa grande impacto na vida de pacientes e familiares. Em crian?as asm?ticas, os pais e cuidadores s?o respons?veis pelo manejo da doen?a e ? fundamental que possuam n?veis adequados de alfabetismo em sa?de e conhecimento em asma. Nosso grupo acredita que o conhecimento em asma e alfabetismo em sa?de de cuidadores de crian?as com o diagn?stico da doen?a ainda s?o baixos na regi?o sul do Brasil e, este estudo, corrobora para uma melhor compreens?o deste panorama. Objetivo: Avaliar o n?vel de conhecimento em asma e alfabetismo em sa?de de cuidadores de crian?as e adolescentes com diagn?stico da doen?a, juntamente com o controle da asma, qualidade de vida e ades?o ao tratamento. M?todos: Trata-se de um estudo transversal, realizado em dois centros de refer?ncia em pneumologia pedi?trica no sul do Brasil, entre novembro de 2015 e abril de 2018. Participaram pais e cuidadores de crian?as e adolescentes com diagn?stico m?dico de asma. Foram inclu?dos os aqueles com idade m?nima de 18 anos, que convivessem regularmente com o paciente, ou seja, morar com a crian?a/adolescente ou cuidar por per?odos superiores a 3 dias (72 horas) semanais, bem como, aqueles que mantinham contato direto entre crian?a, doen?a e tratamento, definido como: conhecer o tratamento m?dico prescrito, aplicar a medica??o e ter recebido orienta??es b?sicas sobre a doen?a. As crian?as e adolescentes deveriam ter entre 1 e 17 anos e estar em acompanhamento ambulatorial. Foram exclu?dos os cuidadores que possu?am problemas cognitivos, bem como, aqueles pacientes com limita??es cognitivas, motoras ou com outras doen?as cr?nicas (exceto rinite e dermatite at?pica). Os principais question?rios aplicados nos cuidadores foram: a) sociodemogr?fico e de classifica??o econ?mica (CCEB); b) Short Assessment of Health Literacy for Portuguese-Speaking Adults (SAHLPA-18), para avaliar o alfabetismo em sa?de; c) Question?rio de Conhecimento em Asma Pedi?trica (Q-CAP); d) Pediatric Asthma Parent Quality of Life Questionnaire (PACQLQ); e e) Global Initiative for Asthma (GINA), para avaliar o controle da asma. Nos pacientes, foram aplicados os question?rios Morisky Medication Adherence Scales (MMAS?8) e o Pediatric Asthma Quality of Life Questionnair (PAQLQ). Para fins estat?sticos, foi utilizado teste t de Student, o teste de qui-quadrado de Person e o teste de Regress?o Log?stica Bin?ria. A signific?ncia foi de 5% (p<0,05). Resultados: Foram inclu?dos no estudo o total de 125 pais/cuidadores, com idade m?dia de 35,7?9,2 anos, 65 (52%) com ensino m?dio completo, 100 (80%) pertencentes a classe econ?mica C, sendo que as m?es eram maioria durante as consultas (n=101; 80,8%). Em rela??o aos pacientes, foram inclu?dos 125 crian?as e adolescentes, 64 (51,2%) do sexo masculino e idade m?dia de 6,68?3,98, destes, 91 (72,8%) n?o estavam com a doen?a totalmente controlada. Em rela??o ? ades?o ao tratamento, foi analisada uma sub amostra com 59 (47,2%) pacientes que responderam o question?rio MMAS-8, sendo que, destes nenhum (n=0; 0%) apresentou alta ades?o ao tratamento. Ainda, quase a totalidade (n=54; 91%) possu?a baixa ades?o. Apenas 51 (40,8%) dos pais e cuidadores possu?am n?veis adequados de alfabetismo em sa?de (SAHLPA-18). Al?m disso, 117 (94,4%) pais apresentaram inadequados n?veis de conhecimento espec?fico em asma (Q-CAP). A qualidade de vida tamb?m foi afetada pelo baixo controle da asma, principalmente nas ?reas de limita??o das atividades e fun??o emocional. Conclus?o: No entanto, pode-se observar que a popula??o analisada apresentou n?veis de alfabetismo em sa?de e conhecimento em asma insatisfat?rios. Ainda, os n?veis de controle da doen?a e ades?o ao tratamento foram baixos podendo estar associados aos n?veis de qualidade de vida. 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dc.title.por.fl_str_mv |
Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma |
title |
Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma |
spellingShingle |
Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma Cardoso, Thiago de Araujo Asma Conhecimento Alfabetismo Pais Qualidade de Vida Asthma Knowledge Literacy Parents Quality of Life CIENCIAS DA SAUDE::MEDICINA |
title_short |
Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma |
title_full |
Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma |
title_fullStr |
Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma |
title_full_unstemmed |
Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma |
title_sort |
Avalia??o dos n?veis de conhecimento, alfabetismo em sa?de e carga da doen?a em crian?as e adolescentes com asma |
author |
Cardoso, Thiago de Araujo |
author_facet |
Cardoso, Thiago de Araujo |
author_role |
author |
dc.contributor.advisor1.fl_str_mv |
Stein, Renato Tetelbom |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/8128743330371501 |
dc.contributor.authorLattes.fl_str_mv |
http://lattes.cnpq.br/3580624128931873 |
dc.contributor.author.fl_str_mv |
Cardoso, Thiago de Araujo |
contributor_str_mv |
Stein, Renato Tetelbom |
dc.subject.por.fl_str_mv |
Asma Conhecimento Alfabetismo Pais Qualidade de Vida |
topic |
Asma Conhecimento Alfabetismo Pais Qualidade de Vida Asthma Knowledge Literacy Parents Quality of Life CIENCIAS DA SAUDE::MEDICINA |
dc.subject.eng.fl_str_mv |
Asthma Knowledge Literacy Parents Quality of Life |
dc.subject.cnpq.fl_str_mv |
CIENCIAS DA SAUDE::MEDICINA |
description |
Introduction: Currently, asthma is still a poorly understood disease that causes great impact on the lives of patients and relatives. In asthmatic children, parents and caregivers are responsible for the management of the disease and it is essential that they have adequate levels of health literacy and knowledge in asthma. Our group believes that knowledge of asthma and health literacy of caregivers of children with the diagnosis of the disease is still low in the southern region of Brazil, and this study corroborates a better understanding of this panorama. Objective: To evaluate the level of knowledge in asthma and health literacy of caregivers of children and adolescents diagnosed with the disease, together with asthma control, quality of life and adherence to treatment. Methods: This is a cross-sectional, descriptive and analytical study conducted in two referral centers in pediatric pulmonology in southern Brazil, between November 2015 and April 2018, where parents and caregivers of children and adolescents with medical diagnosis of asthma. We included parents and caregivers with a minimum age of 18 years, who were regularly with the patient, that is, living with the child/adolescent or caring for periods exceeding 3 days (72 hours) per week, as well as those who kept me direct contact between Child, disease and treatment, defined as: Knowing the prescribed medical treatment, applying the medication and having received basic guidance on the disease. Children and adolescents should be between 1 and 17 years old and be in outpatient follow-up. Caregivers who had cognitive problems were excluded, as well as those patients with cognitive, motor or other chronic diseases (except rhinitis and atopic dermatitis). The main questionnaires applied to caregivers were: a) socio-demographic and economic classification (CCEB); b) Short Assessment of Health Literacy for Portuguese-Speaking Adults (SAHLPA-18), to evaluate the health literacy; c) Question?rio de Conhecimento em Asma Pedi?trica (Q-CAP); d) Pediatric Asthma Parent Quality of Life Questionnaire (PACQLQ); and e) Global Initiative for Asthma (GINA), to assess asthma control. In the patients, the questionnaires were applied Morisky Medication Adherence Scales (MMAS?8) and the Pediatric Asthma Quality of Life Questionnair (PAQLQ). For statistical purposes, Student t test, Person Chi-square test and Binary Logistic Regression test were used. The significance was 5% (p < 0.05). Results: A total of 125 parents/caregivers were included in the study, with a mean age of 35.7 ? 9.2 years, 65 (52%) With full high school, 100 (80%) belonging to economic class C, and mothers were majority during consultations (n = 101; 80.8%). In relation to the patients, 125 children and adolescents were included, 64 (51.2%) males and mean age of 6,68 ? 3,98, of these, 91 (72.8%) were not with the disease fully controlled. Regarding adherence to treatment, a sub-sample was analyzed with 59 (47.2%) patients who answered the MMAS-8 questionnaire, and none of them (n = 0; 0%) showed high adherence to treatment. Still, almost all (n = 54; 91, 5%) had low adherence. Only 51 (40.8%) of parents and caregivers had adequate levels of health literacy (SAHLPA-18). In addition, 117 (94.4%) parents presented inadequate levels of specific knowledge in asthma (Q-CAP). Quality of life was also affected by low asthma control, especially in the areas of activity limitation and emotional function. Conclusion: However, it can be observed that the population analyzed presented levels of in health literacy and knowledge in unsatisfactory asthma. Also, the levels of disease control and adherence to treatment were low and may be associated with quality of life levels. It is hoped that the health education levels of caregivers of children with asthma are adequate for the management of the disease to be effective. |
publishDate |
2019 |
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2019-11-06T12:32:20Z |
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2019-07-09 |
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Pontif?cia Universidade Cat?lica do Rio Grande do Sul |
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Escola de Medicina |
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Pontif?cia Universidade Cat?lica do Rio Grande do Sul |
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biblioteca.central@pucrs.br|| |
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1796793242573864960 |