Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais

Detalhes bibliográficos
Ano de defesa: 2020
Autor(a) principal: Moraes, Marina Nascimento de
Orientador(a): Não Informado pela instituição
Banca de defesa: Não Informado pela instituição
Tipo de documento: Tese
Tipo de acesso: Acesso aberto
Idioma: por
Instituição de defesa: Universidade Federal da Paraíba
Brasil
Enfermagem
Programa de Pós-Graduação em Enfermagem
UFPB
Programa de Pós-Graduação: Não Informado pela instituição
Departamento: Não Informado pela instituição
País: Não Informado pela instituição
Palavras-chave em Português:
Link de acesso: https://repositorio.ufpb.br/jspui/handle/123456789/21086
Resumo: Objective: To analyze the burden experienced by women caregivers of children and adolescents with mental disorders, identifying the factors linked to burden and the coping strategies that are used by those who have high subjective burden. Method: Study carried out in two stages, in an outpatient clinic for childhood and adolescence psychiatry in a capital city in Northeastern Brazil. The first step was a cross-sectional, correlational study, with a quantitative approach, developed with 164 caregivers, using a socioeconomic questionnaire and the Scale of Burden of Family Members of Psychiatric Patients. The data from this stage were tabulated and analyzed using statistical software, using descriptive statistics and inferential analysis. In the second stage, a qualitative, descriptive, exploratory study, individual, semi-structured interviews were conducted with 14 caregivers. The interviews were transcribed and analyzed with the aid of software. Results: In the first stage, an average total caregiver burden of 3.07 was observed, while the averages of objective and subjective burdens were 3.23 and 2.45, respectively. We identified high objective burden related to assistance in activities of daily living and high subjective burden resulting from living with problematic behaviors. There was also a significant correlation between the number of people the caregiver provides care for, the age of the caregiver and the individual cared for with both objective and subjective burden. The data from the second stage point to the formation of three main factors linked to burden among caregivers with high subjective burden: the lack of support in caring, the various responsibilities that these women have and the lack of knowledge about the best management and pathology that affects minors. As for coping strategies, spirituality, the practice of pleasurable activities and the search for social support were the most present. Conclusion: The data from this research show that burden is present at high levels in the daily lives of these collaborators, being related to different factors and coping strategies. The recognition of factors linked to caregiver burden allows to identify more clearly the needs of these caregivers, thus enabling services and the State to be responsible for this care, through public policies and the implementation of actions aimed at the well-being and aspirations of these women.
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spelling Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentaisCuidadoresAdolescentesCriançaSaúde mentalMulheresFamíliaCaregiversAdolescentsChildMental healthWomenFamilyCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMObjective: To analyze the burden experienced by women caregivers of children and adolescents with mental disorders, identifying the factors linked to burden and the coping strategies that are used by those who have high subjective burden. Method: Study carried out in two stages, in an outpatient clinic for childhood and adolescence psychiatry in a capital city in Northeastern Brazil. The first step was a cross-sectional, correlational study, with a quantitative approach, developed with 164 caregivers, using a socioeconomic questionnaire and the Scale of Burden of Family Members of Psychiatric Patients. The data from this stage were tabulated and analyzed using statistical software, using descriptive statistics and inferential analysis. In the second stage, a qualitative, descriptive, exploratory study, individual, semi-structured interviews were conducted with 14 caregivers. The interviews were transcribed and analyzed with the aid of software. Results: In the first stage, an average total caregiver burden of 3.07 was observed, while the averages of objective and subjective burdens were 3.23 and 2.45, respectively. We identified high objective burden related to assistance in activities of daily living and high subjective burden resulting from living with problematic behaviors. There was also a significant correlation between the number of people the caregiver provides care for, the age of the caregiver and the individual cared for with both objective and subjective burden. The data from the second stage point to the formation of three main factors linked to burden among caregivers with high subjective burden: the lack of support in caring, the various responsibilities that these women have and the lack of knowledge about the best management and pathology that affects minors. As for coping strategies, spirituality, the practice of pleasurable activities and the search for social support were the most present. Conclusion: The data from this research show that burden is present at high levels in the daily lives of these collaborators, being related to different factors and coping strategies. The recognition of factors linked to caregiver burden allows to identify more clearly the needs of these caregivers, thus enabling services and the State to be responsible for this care, through public policies and the implementation of actions aimed at the well-being and aspirations of these women.NenhumaObjetivo: Analisar a sobrecarga vivenciada por mulheres cuidadoras de crianças e adolescentes com transtorno mental, identificando os fatores vinculados a sobrecarga e as estratégias de enfrentamento que são utilizadas por aquelas que apresentam alta sobrecarga subjetiva. Método: Estudo realizado em duas etapas, em um ambulatório de psiquiatria da infância e adolescência de uma capital do nordeste Brasileiro. A primeira etapa tratou-se de um estudo transversal, correlacional, com abordagem quantitativa, desenvolvido com 164 cuidadoras, utilizando-se um questionário socioeconômico e a Escala de Sobrecarga dos Familiares de Pacientes Psiquiátricos. Os dados provenientes desta etapa foram tabulados e analisados por software estatístico, utilizando-se da estatística descritiva e análise inferencial. Na segunda etapa, um estudo qualitativo, descritivo, exploratório, realizou-se entrevistas individuais, semiestruturadas, com 14 cuidadoras. As entrevistas foram transcritas e analisadas com o auxílio de um software. Resultados: Na primeira etapa, observou-se uma sobrecarga total média de 3,07, enquanto as médias das sobrecargas objetiva e subjetiva foram 3,23 e 2,45, respectivamente. Identificou-se sobrecarga objetiva alta relacionada a assistência em atividades da vida cotidiana e sobrecarga subjetiva alta decorrente do convívio com comportamentos problemáticos. Verificou-se também correlação significativa entre a quantidade de pessoas que o cuidador fornece cuidados, idade do cuidador e do indivíduo cuidado tanto com a sobrecarga objetiva, quanto da subjetiva. Os dados da segunda etapa apontam para a formação de três principais fatores vinculados a sobrecarga entre as cuidadoras com sobrecarga subjetiva alta: a falta de apoio no cuidar, as diversas responsabilidades que estas mulheres possuem e a falta de conhecimento acerca do melhor manejo e da patologia que acomete os menores. Quanto as estratégias de enfrentamento, a espiritualidade, a prática de atividades prazerosas e a busca por suporte social foram as mais presentes. Conclusão: Os dados desta pesquisa evidenciam que a sobrecarga está presente em níveis elevados no cotidiano dessas colaboradoras, estando relacionada a diferentes fatores e estratégias de enfrentamento. O reconhecimento dos fatores atrelados a sobrecarga permite identificar com maior clareza as necessidades destas cuidadoras, possibilitando assim que os serviços e o Estado se corresponsabilizem nesse cuidado, por meio de políticas públicas e implementação de ações que visem o bem-estar e as aspirações dessas mulheres.Universidade Federal da ParaíbaBrasilEnfermagemPrograma de Pós-Graduação em EnfermagemUFPBDias, Maria Djairhttp://lattes.cnpq.br/8451343215996468Moraes, Marina Nascimento de2021-09-23T22:09:40Z2021-04-302021-09-23T22:09:40Z2020-12-16info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesishttps://repositorio.ufpb.br/jspui/handle/123456789/21086porAttribution-NoDerivs 3.0 Brazilhttp://creativecommons.org/licenses/by-nd/3.0/br/info:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UFPBinstname:Universidade Federal da Paraíba (UFPB)instacron:UFPB2022-08-09T17:54:31Zoai:repositorio.ufpb.br:123456789/21086Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufpb.br/PUBhttp://tede.biblioteca.ufpb.br:8080/oai/requestdiretoria@ufpb.br|| diretoria@ufpb.bropendoar:2022-08-09T17:54:31Biblioteca Digital de Teses e Dissertações da UFPB - Universidade Federal da Paraíba (UFPB)false
dc.title.none.fl_str_mv Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais
title Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais
spellingShingle Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais
Moraes, Marina Nascimento de
Cuidadores
Adolescentes
Criança
Saúde mental
Mulheres
Família
Caregivers
Adolescents
Child
Mental health
Women
Family
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
title_short Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais
title_full Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais
title_fullStr Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais
title_full_unstemmed Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais
title_sort Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais
author Moraes, Marina Nascimento de
author_facet Moraes, Marina Nascimento de
author_role author
dc.contributor.none.fl_str_mv Dias, Maria Djair
http://lattes.cnpq.br/8451343215996468
dc.contributor.author.fl_str_mv Moraes, Marina Nascimento de
dc.subject.por.fl_str_mv Cuidadores
Adolescentes
Criança
Saúde mental
Mulheres
Família
Caregivers
Adolescents
Child
Mental health
Women
Family
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
topic Cuidadores
Adolescentes
Criança
Saúde mental
Mulheres
Família
Caregivers
Adolescents
Child
Mental health
Women
Family
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
description Objective: To analyze the burden experienced by women caregivers of children and adolescents with mental disorders, identifying the factors linked to burden and the coping strategies that are used by those who have high subjective burden. Method: Study carried out in two stages, in an outpatient clinic for childhood and adolescence psychiatry in a capital city in Northeastern Brazil. The first step was a cross-sectional, correlational study, with a quantitative approach, developed with 164 caregivers, using a socioeconomic questionnaire and the Scale of Burden of Family Members of Psychiatric Patients. The data from this stage were tabulated and analyzed using statistical software, using descriptive statistics and inferential analysis. In the second stage, a qualitative, descriptive, exploratory study, individual, semi-structured interviews were conducted with 14 caregivers. The interviews were transcribed and analyzed with the aid of software. Results: In the first stage, an average total caregiver burden of 3.07 was observed, while the averages of objective and subjective burdens were 3.23 and 2.45, respectively. We identified high objective burden related to assistance in activities of daily living and high subjective burden resulting from living with problematic behaviors. There was also a significant correlation between the number of people the caregiver provides care for, the age of the caregiver and the individual cared for with both objective and subjective burden. The data from the second stage point to the formation of three main factors linked to burden among caregivers with high subjective burden: the lack of support in caring, the various responsibilities that these women have and the lack of knowledge about the best management and pathology that affects minors. As for coping strategies, spirituality, the practice of pleasurable activities and the search for social support were the most present. Conclusion: The data from this research show that burden is present at high levels in the daily lives of these collaborators, being related to different factors and coping strategies. The recognition of factors linked to caregiver burden allows to identify more clearly the needs of these caregivers, thus enabling services and the State to be responsible for this care, through public policies and the implementation of actions aimed at the well-being and aspirations of these women.
publishDate 2020
dc.date.none.fl_str_mv 2020-12-16
2021-09-23T22:09:40Z
2021-04-30
2021-09-23T22:09:40Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/doctoralThesis
format doctoralThesis
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dc.identifier.uri.fl_str_mv https://repositorio.ufpb.br/jspui/handle/123456789/21086
url https://repositorio.ufpb.br/jspui/handle/123456789/21086
dc.language.iso.fl_str_mv por
language por
dc.rights.driver.fl_str_mv Attribution-NoDerivs 3.0 Brazil
http://creativecommons.org/licenses/by-nd/3.0/br/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Attribution-NoDerivs 3.0 Brazil
http://creativecommons.org/licenses/by-nd/3.0/br/
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv Universidade Federal da Paraíba
Brasil
Enfermagem
Programa de Pós-Graduação em Enfermagem
UFPB
publisher.none.fl_str_mv Universidade Federal da Paraíba
Brasil
Enfermagem
Programa de Pós-Graduação em Enfermagem
UFPB
dc.source.none.fl_str_mv reponame:Biblioteca Digital de Teses e Dissertações da UFPB
instname:Universidade Federal da Paraíba (UFPB)
instacron:UFPB
instname_str Universidade Federal da Paraíba (UFPB)
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institution UFPB
reponame_str Biblioteca Digital de Teses e Dissertações da UFPB
collection Biblioteca Digital de Teses e Dissertações da UFPB
repository.name.fl_str_mv Biblioteca Digital de Teses e Dissertações da UFPB - Universidade Federal da Paraíba (UFPB)
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