Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral
Ano de defesa: | 2015 |
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Autor(a) principal: | |
Orientador(a): | |
Banca de defesa: | , |
Tipo de documento: | Dissertação |
Tipo de acesso: | Acesso aberto |
Idioma: | por |
Instituição de defesa: |
Universidade Tuiuti do Parana
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Programa de Pós-Graduação: |
Mestrado em Distúrbios da Comunicação
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Departamento: |
Distúrbios da Comunicação
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País: |
Brasil
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Palavras-chave em Português: | |
Palavras-chave em Inglês: | |
Área do conhecimento CNPq: | |
Resumo em Inglês: | Introduction: the presence of a child or adolescent suffering from Cerebral Palsy alters the way of living of people around them and their family caregivers, who need to deliver them care along with their daily tasks. The intense care demand required by the person suffering from Cerebral Palsy may cause their family members to feel tired, isolated, stressed and overburdened. Objective: to identify family caregivers’ perceptions on the caring process of children and adolescents with Cerebral Palsy, patients of a teaching hospital from the Unified Health System. Method: it is a quanti-qualitative study with 50 family caregivers of children and adolescents with cerebral palsy. For data collection, a questionnaire with 39 questions was used, being 35 closed questions and 4 open ones. Zarit Burden Inventory was used. For quantitative investigation, chi-square test was applied to variable association, considering p = 0.05 as the statistical significance level. As for the qualitative approach, content analysis was carried out, according to the method proposed by Bardin. Results: family caregivers’ average age was 35.2 years, median = 34.5 and SD = 10.5 years, 94% are women, 80% are mothers, 72% claim they are married, 38% have high-school level of education, and 44% are unemployed. Moreover, 77.6% point out changes in their personal life due to care delivery, 42% refer to have their own health affected and 72% search for religious support. Regarding the burden degree, it was observed that 48% of the caregivers unfold mild burden, and 52% unfold moderate burden score. From content analysis, it is possible to infer that most caregivers have positive perceptions on the caring act, and connect their reported Quality of Life to the care recipients. As for caregivers’ rights and duties understanding, a significant number of respondents relate their own citizenship to the rights of the cared subjects. Conclusion: in spite of caregivers’ positive perceptions on delivering care to children and adolescents with cerebral palsy, it is perceived that such a practice may overload subjects who render care along the years. Thus, this may hinder their own physical, mental and social health conditions, with significant changes in their quality of life and the care recipients’. It is health professionals’ duty to develop actions in order to promote caregivers’ knowledge to empower them for care development. It is pointed out that such actions need to be carried out in order to facilitate care delivery in family context, avoiding overburden and promoting caregivers’ health while considering their personal and family history, culture, beliefs and values. |
Link de acesso: | http://tede.utp.br:8080/jspui/handle/tede/1420 |
Resumo: | Introduction: the presence of a child or adolescent suffering from Cerebral Palsy alters the way of living of people around them and their family caregivers, who need to deliver them care along with their daily tasks. The intense care demand required by the person suffering from Cerebral Palsy may cause their family members to feel tired, isolated, stressed and overburdened. Objective: to identify family caregivers’ perceptions on the caring process of children and adolescents with Cerebral Palsy, patients of a teaching hospital from the Unified Health System. Method: it is a quanti-qualitative study with 50 family caregivers of children and adolescents with cerebral palsy. For data collection, a questionnaire with 39 questions was used, being 35 closed questions and 4 open ones. Zarit Burden Inventory was used. For quantitative investigation, chi-square test was applied to variable association, considering p = 0.05 as the statistical significance level. As for the qualitative approach, content analysis was carried out, according to the method proposed by Bardin. Results: family caregivers’ average age was 35.2 years, median = 34.5 and SD = 10.5 years, 94% are women, 80% are mothers, 72% claim they are married, 38% have high-school level of education, and 44% are unemployed. Moreover, 77.6% point out changes in their personal life due to care delivery, 42% refer to have their own health affected and 72% search for religious support. Regarding the burden degree, it was observed that 48% of the caregivers unfold mild burden, and 52% unfold moderate burden score. From content analysis, it is possible to infer that most caregivers have positive perceptions on the caring act, and connect their reported Quality of Life to the care recipients. As for caregivers’ rights and duties understanding, a significant number of respondents relate their own citizenship to the rights of the cared subjects. Conclusion: in spite of caregivers’ positive perceptions on delivering care to children and adolescents with cerebral palsy, it is perceived that such a practice may overload subjects who render care along the years. Thus, this may hinder their own physical, mental and social health conditions, with significant changes in their quality of life and the care recipients’. It is health professionals’ duty to develop actions in order to promote caregivers’ knowledge to empower them for care development. It is pointed out that such actions need to be carried out in order to facilitate care delivery in family context, avoiding overburden and promoting caregivers’ health while considering their personal and family history, culture, beliefs and values. |
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Biblioteca Digital de Teses e Dissertações do UTP |
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Massi, Giselle Aparecida de AthaydeWillig, Mariluci HautschSantos, Rosane SampaioFreire, Marcia Helena de Souzahttp://lattes.cnpq.br/8609252784671759Santos, Rosane Maria dos2018-06-26T12:44:28Z2015-04-22Santos, Rosane Maria dos. Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral. 2015. 117 f. Dissertação( Mestrado em Distúrbios da Comunicação) - Universidade Tuiuti do Paraná, Curitiba, 2015.http://tede.utp.br:8080/jspui/handle/tede/1420Introduction: the presence of a child or adolescent suffering from Cerebral Palsy alters the way of living of people around them and their family caregivers, who need to deliver them care along with their daily tasks. The intense care demand required by the person suffering from Cerebral Palsy may cause their family members to feel tired, isolated, stressed and overburdened. Objective: to identify family caregivers’ perceptions on the caring process of children and adolescents with Cerebral Palsy, patients of a teaching hospital from the Unified Health System. Method: it is a quanti-qualitative study with 50 family caregivers of children and adolescents with cerebral palsy. For data collection, a questionnaire with 39 questions was used, being 35 closed questions and 4 open ones. Zarit Burden Inventory was used. For quantitative investigation, chi-square test was applied to variable association, considering p = 0.05 as the statistical significance level. As for the qualitative approach, content analysis was carried out, according to the method proposed by Bardin. Results: family caregivers’ average age was 35.2 years, median = 34.5 and SD = 10.5 years, 94% are women, 80% are mothers, 72% claim they are married, 38% have high-school level of education, and 44% are unemployed. Moreover, 77.6% point out changes in their personal life due to care delivery, 42% refer to have their own health affected and 72% search for religious support. Regarding the burden degree, it was observed that 48% of the caregivers unfold mild burden, and 52% unfold moderate burden score. From content analysis, it is possible to infer that most caregivers have positive perceptions on the caring act, and connect their reported Quality of Life to the care recipients. As for caregivers’ rights and duties understanding, a significant number of respondents relate their own citizenship to the rights of the cared subjects. Conclusion: in spite of caregivers’ positive perceptions on delivering care to children and adolescents with cerebral palsy, it is perceived that such a practice may overload subjects who render care along the years. Thus, this may hinder their own physical, mental and social health conditions, with significant changes in their quality of life and the care recipients’. It is health professionals’ duty to develop actions in order to promote caregivers’ knowledge to empower them for care development. It is pointed out that such actions need to be carried out in order to facilitate care delivery in family context, avoiding overburden and promoting caregivers’ health while considering their personal and family history, culture, beliefs and values.Introdução: a presença de uma criança ou adolescente com Paralisia Cerebral altera o modo de vida das pessoas que convivem com elas e o de seus cuidadores familiares, que precisam realizar o cuidado em paralelo às tarefas cotidianas. A demanda intensa de cuidados requeridos pela pessoa com Paralisia Cerebral pode levar seus familiares a sentirem-se cansados, isolados, estressados e sobrecarregados. Objetivo: identificar as percepções de cuidadores familiares acerca do processo de cuidar de crianças e adolescentes com paralisia cerebral, atendidos em um hospital de ensino, vinculado ao Sistema Único de Saúde. Método: trata-se de um estudo de abordagem mista no qual participaram 50 cuidadores familiares de crianças e adolescentes com paralisia cerebral. Para a coleta dos dados, utilizou-se de questionário composto por 39 questões, sendo 35 fechadas e quatro abertas. Foi usado o Inventário de Sobrecarga de Zarit. Para a investigação quantitativa foi aplicado o teste estatístico qui-quadrado nas associações de variáveis, considerando-se o nível de significância estatística de 0,05. Para a abordagem qualitativa, foi realizada análise de conteúdo, conforme método proposto por Bardin. Resultados: a média de idade dos cuidadores familiares foi de 35,2 anos, mediana de 34,5 e desvio padrão 10,5 anos, 94% são mulheres, 80% são mães, 72% declaram-se casadas, 38% afirmam ter o segundo grau, e 44% estão desempregados. Além disso, 77,6% apontam alterações na vida pessoal ocasionadas pelo ato de cuidar, 42% referem oscilação na própria saúde e 72% buscam apoio na religiosidade. Concernente ao grau de sobrecarga observou-se que 48% dos cuidadores indicam pequena sobrecarga e 52% grau moderado. A partir da análise de conteúdo, é possível inferir que a maioria dos cuidadores tem percepções positivas diante do ato de cuidar e, ao relatarem sobre sua Qualidade de Vida, vinculam-na ao bem estar dos sujeitos cuidados. Com relação ao entendimento acerca de direitos e deveres dos cuidadores, parcela significativa dos respondentes vincula a sua própria cidadania aos direitos dos sujeitos aos quais cuidam. Conclusão: apesar, das percepções positivas dos cuidadores acerca do cuidar de crianças e adolescentes com Paralisia Cerebral, percebe-se que essa prática ao longo dos anos pode sobrecarregar o sujeito que cuida. E isso pode comprometer a sua condição de saúde física, mental e social, com alterações significativas em sua qualidade de vida e na do sujeito cuidado. Compete aos profissionais de saúde o desenvolvimento de ações que promovam o conhecimento do cuidador, a fim de empoderá-lo para o desenvolvimento do cuidado. Ressalta-se que essas ações precisam ser desenvolvidas no sentido de facilitar a prática do cuidado no contexto familiar, evitando a sobrecarga e promovendo a saúde do cuidador, considerando sua história pessoal e familiar, sua cultura, crenças e valoresSubmitted by maria oliveira (maria.oliveira@utp.br) on 2018-06-26T12:44:28Z No. of bitstreams: 1 PERCEPCOES SOBRE O PROCESSO.pdf: 1948910 bytes, checksum: d36ad20294d76de3572ad6ba6ade8176 (MD5)Made available in DSpace on 2018-06-26T12:44:28Z (GMT). No. of bitstreams: 1 PERCEPCOES SOBRE O PROCESSO.pdf: 1948910 bytes, checksum: d36ad20294d76de3572ad6ba6ade8176 (MD5) Previous issue date: 2015-04-22application/pdfporUniversidade Tuiuti do ParanaMestrado em Distúrbios da ComunicaçãoUTPBrasilDistúrbios da ComunicaçãoParalisia cerebralCuidado da criançaCuidadores familiaresEnfermagem pediátricaCerebral palsyChild careFamily caregiversPediatric nursingCIENCIAS DA SAUDE::FONOAUDIOLOGIAPercepções sobre o processo de cuidar de sujeitos com paralisia cerebralinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesis-6104338271566220491500500600-1465691230269154980-1446670330325391347info:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações do UTPinstname:Universidade Tuiuti do Paranáinstacron:UTPORIGINALPERCEPCOES SOBRE O PROCESSO.pdfPERCEPCOES SOBRE O PROCESSO.pdfapplication/pdf1948910http://localhost:8080/tede/bitstream/tede/1420/2/PERCEPCOES+SOBRE+O+PROCESSO.pdfd36ad20294d76de3572ad6ba6ade8176MD52LICENSElicense.txtlicense.txttext/plain; charset=utf-82165http://localhost:8080/tede/bitstream/tede/1420/1/license.txtbd3efa91386c1718a7f26a329fdcb468MD51tede/1420oai:localhost:tede/14202018-06-26 09:44:28.598TEDEtede@utp.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 |
dc.title.por.fl_str_mv |
Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral |
title |
Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral |
spellingShingle |
Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral Santos, Rosane Maria dos Paralisia cerebral Cuidado da criança Cuidadores familiares Enfermagem pediátrica Cerebral palsy Child care Family caregivers Pediatric nursing CIENCIAS DA SAUDE::FONOAUDIOLOGIA |
title_short |
Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral |
title_full |
Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral |
title_fullStr |
Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral |
title_full_unstemmed |
Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral |
title_sort |
Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral |
author |
Santos, Rosane Maria dos |
author_facet |
Santos, Rosane Maria dos |
author_role |
author |
dc.contributor.advisor1.fl_str_mv |
Massi, Giselle Aparecida de Athayde |
dc.contributor.advisor-co1.fl_str_mv |
Willig, Mariluci Hautsch |
dc.contributor.referee1.fl_str_mv |
Santos, Rosane Sampaio |
dc.contributor.referee2.fl_str_mv |
Freire, Marcia Helena de Souza |
dc.contributor.authorLattes.fl_str_mv |
http://lattes.cnpq.br/8609252784671759 |
dc.contributor.author.fl_str_mv |
Santos, Rosane Maria dos |
contributor_str_mv |
Massi, Giselle Aparecida de Athayde Willig, Mariluci Hautsch Santos, Rosane Sampaio Freire, Marcia Helena de Souza |
dc.subject.por.fl_str_mv |
Paralisia cerebral Cuidado da criança Cuidadores familiares Enfermagem pediátrica |
topic |
Paralisia cerebral Cuidado da criança Cuidadores familiares Enfermagem pediátrica Cerebral palsy Child care Family caregivers Pediatric nursing CIENCIAS DA SAUDE::FONOAUDIOLOGIA |
dc.subject.eng.fl_str_mv |
Cerebral palsy Child care Family caregivers Pediatric nursing |
dc.subject.cnpq.fl_str_mv |
CIENCIAS DA SAUDE::FONOAUDIOLOGIA |
dc.description.abstract.eng.fl_txt_mv |
Introduction: the presence of a child or adolescent suffering from Cerebral Palsy alters the way of living of people around them and their family caregivers, who need to deliver them care along with their daily tasks. The intense care demand required by the person suffering from Cerebral Palsy may cause their family members to feel tired, isolated, stressed and overburdened. Objective: to identify family caregivers’ perceptions on the caring process of children and adolescents with Cerebral Palsy, patients of a teaching hospital from the Unified Health System. Method: it is a quanti-qualitative study with 50 family caregivers of children and adolescents with cerebral palsy. For data collection, a questionnaire with 39 questions was used, being 35 closed questions and 4 open ones. Zarit Burden Inventory was used. For quantitative investigation, chi-square test was applied to variable association, considering p = 0.05 as the statistical significance level. As for the qualitative approach, content analysis was carried out, according to the method proposed by Bardin. Results: family caregivers’ average age was 35.2 years, median = 34.5 and SD = 10.5 years, 94% are women, 80% are mothers, 72% claim they are married, 38% have high-school level of education, and 44% are unemployed. Moreover, 77.6% point out changes in their personal life due to care delivery, 42% refer to have their own health affected and 72% search for religious support. Regarding the burden degree, it was observed that 48% of the caregivers unfold mild burden, and 52% unfold moderate burden score. From content analysis, it is possible to infer that most caregivers have positive perceptions on the caring act, and connect their reported Quality of Life to the care recipients. As for caregivers’ rights and duties understanding, a significant number of respondents relate their own citizenship to the rights of the cared subjects. Conclusion: in spite of caregivers’ positive perceptions on delivering care to children and adolescents with cerebral palsy, it is perceived that such a practice may overload subjects who render care along the years. Thus, this may hinder their own physical, mental and social health conditions, with significant changes in their quality of life and the care recipients’. It is health professionals’ duty to develop actions in order to promote caregivers’ knowledge to empower them for care development. It is pointed out that such actions need to be carried out in order to facilitate care delivery in family context, avoiding overburden and promoting caregivers’ health while considering their personal and family history, culture, beliefs and values. |
dc.description.abstract.por.fl_txt_mv |
Introdução: a presença de uma criança ou adolescente com Paralisia Cerebral altera o modo de vida das pessoas que convivem com elas e o de seus cuidadores familiares, que precisam realizar o cuidado em paralelo às tarefas cotidianas. A demanda intensa de cuidados requeridos pela pessoa com Paralisia Cerebral pode levar seus familiares a sentirem-se cansados, isolados, estressados e sobrecarregados. Objetivo: identificar as percepções de cuidadores familiares acerca do processo de cuidar de crianças e adolescentes com paralisia cerebral, atendidos em um hospital de ensino, vinculado ao Sistema Único de Saúde. Método: trata-se de um estudo de abordagem mista no qual participaram 50 cuidadores familiares de crianças e adolescentes com paralisia cerebral. Para a coleta dos dados, utilizou-se de questionário composto por 39 questões, sendo 35 fechadas e quatro abertas. Foi usado o Inventário de Sobrecarga de Zarit. Para a investigação quantitativa foi aplicado o teste estatístico qui-quadrado nas associações de variáveis, considerando-se o nível de significância estatística de 0,05. Para a abordagem qualitativa, foi realizada análise de conteúdo, conforme método proposto por Bardin. Resultados: a média de idade dos cuidadores familiares foi de 35,2 anos, mediana de 34,5 e desvio padrão 10,5 anos, 94% são mulheres, 80% são mães, 72% declaram-se casadas, 38% afirmam ter o segundo grau, e 44% estão desempregados. Além disso, 77,6% apontam alterações na vida pessoal ocasionadas pelo ato de cuidar, 42% referem oscilação na própria saúde e 72% buscam apoio na religiosidade. Concernente ao grau de sobrecarga observou-se que 48% dos cuidadores indicam pequena sobrecarga e 52% grau moderado. A partir da análise de conteúdo, é possível inferir que a maioria dos cuidadores tem percepções positivas diante do ato de cuidar e, ao relatarem sobre sua Qualidade de Vida, vinculam-na ao bem estar dos sujeitos cuidados. Com relação ao entendimento acerca de direitos e deveres dos cuidadores, parcela significativa dos respondentes vincula a sua própria cidadania aos direitos dos sujeitos aos quais cuidam. Conclusão: apesar, das percepções positivas dos cuidadores acerca do cuidar de crianças e adolescentes com Paralisia Cerebral, percebe-se que essa prática ao longo dos anos pode sobrecarregar o sujeito que cuida. E isso pode comprometer a sua condição de saúde física, mental e social, com alterações significativas em sua qualidade de vida e na do sujeito cuidado. Compete aos profissionais de saúde o desenvolvimento de ações que promovam o conhecimento do cuidador, a fim de empoderá-lo para o desenvolvimento do cuidado. Ressalta-se que essas ações precisam ser desenvolvidas no sentido de facilitar a prática do cuidado no contexto familiar, evitando a sobrecarga e promovendo a saúde do cuidador, considerando sua história pessoal e familiar, sua cultura, crenças e valores |
description |
Introduction: the presence of a child or adolescent suffering from Cerebral Palsy alters the way of living of people around them and their family caregivers, who need to deliver them care along with their daily tasks. The intense care demand required by the person suffering from Cerebral Palsy may cause their family members to feel tired, isolated, stressed and overburdened. Objective: to identify family caregivers’ perceptions on the caring process of children and adolescents with Cerebral Palsy, patients of a teaching hospital from the Unified Health System. Method: it is a quanti-qualitative study with 50 family caregivers of children and adolescents with cerebral palsy. For data collection, a questionnaire with 39 questions was used, being 35 closed questions and 4 open ones. Zarit Burden Inventory was used. For quantitative investigation, chi-square test was applied to variable association, considering p = 0.05 as the statistical significance level. As for the qualitative approach, content analysis was carried out, according to the method proposed by Bardin. Results: family caregivers’ average age was 35.2 years, median = 34.5 and SD = 10.5 years, 94% are women, 80% are mothers, 72% claim they are married, 38% have high-school level of education, and 44% are unemployed. Moreover, 77.6% point out changes in their personal life due to care delivery, 42% refer to have their own health affected and 72% search for religious support. Regarding the burden degree, it was observed that 48% of the caregivers unfold mild burden, and 52% unfold moderate burden score. From content analysis, it is possible to infer that most caregivers have positive perceptions on the caring act, and connect their reported Quality of Life to the care recipients. As for caregivers’ rights and duties understanding, a significant number of respondents relate their own citizenship to the rights of the cared subjects. Conclusion: in spite of caregivers’ positive perceptions on delivering care to children and adolescents with cerebral palsy, it is perceived that such a practice may overload subjects who render care along the years. Thus, this may hinder their own physical, mental and social health conditions, with significant changes in their quality of life and the care recipients’. It is health professionals’ duty to develop actions in order to promote caregivers’ knowledge to empower them for care development. It is pointed out that such actions need to be carried out in order to facilitate care delivery in family context, avoiding overburden and promoting caregivers’ health while considering their personal and family history, culture, beliefs and values. |
publishDate |
2015 |
dc.date.issued.fl_str_mv |
2015-04-22 |
dc.date.accessioned.fl_str_mv |
2018-06-26T12:44:28Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/masterThesis |
status_str |
publishedVersion |
format |
masterThesis |
dc.identifier.citation.fl_str_mv |
Santos, Rosane Maria dos. Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral. 2015. 117 f. Dissertação( Mestrado em Distúrbios da Comunicação) - Universidade Tuiuti do Paraná, Curitiba, 2015. |
dc.identifier.uri.fl_str_mv |
http://tede.utp.br:8080/jspui/handle/tede/1420 |
identifier_str_mv |
Santos, Rosane Maria dos. Percepções sobre o processo de cuidar de sujeitos com paralisia cerebral. 2015. 117 f. Dissertação( Mestrado em Distúrbios da Comunicação) - Universidade Tuiuti do Paraná, Curitiba, 2015. |
url |
http://tede.utp.br:8080/jspui/handle/tede/1420 |
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por |
language |
por |
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-6104338271566220491 |
dc.relation.confidence.fl_str_mv |
500 500 600 |
dc.relation.department.fl_str_mv |
-1465691230269154980 |
dc.relation.cnpq.fl_str_mv |
-1446670330325391347 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Tuiuti do Parana |
dc.publisher.program.fl_str_mv |
Mestrado em Distúrbios da Comunicação |
dc.publisher.initials.fl_str_mv |
UTP |
dc.publisher.country.fl_str_mv |
Brasil |
dc.publisher.department.fl_str_mv |
Distúrbios da Comunicação |
publisher.none.fl_str_mv |
Universidade Tuiuti do Parana |
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reponame:Biblioteca Digital de Teses e Dissertações do UTP instname:Universidade Tuiuti do Paraná instacron:UTP |
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Universidade Tuiuti do Paraná |
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UTP |
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UTP |
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http://localhost:8080/tede/bitstream/tede/1420/2/PERCEPCOES+SOBRE+O+PROCESSO.pdf http://localhost:8080/tede/bitstream/tede/1420/1/license.txt |
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