Qualidade de vida de crianças e adolescentes com transtorno de déficit de atenção e hiperatividade (TDAH) e seus principais cuidadores

• Ano de defesa: 2016
• Autor(a) principal: Andrade, Elisa Meireles [UNIFESP]
• Tipo de documento: Tese
• Tipo de acesso: Acesso aberto
• dARK ID: ark:/48912/001300002rt3j
• Idioma: por
• Instituição de defesa: Universidade Federal de São Paulo (UNIFESP)
• Palavras-chave em Português: Quality of life; Attention-deficit/hyperactivity disorder; Child; Adolescent; Caregivers; Qualidade de vida; TDAH; Crianças; Família; Cuidadores
• Link de acesso: https://sucupira.capes.gov.br/sucupira/public/consultas/coleta/trabalhoConclusao/viewTrabalhoConclusao.jsf?popup=true&id_trabalho=3725295; http://repositorio.unifesp.br/handle/11600/47662

ADHD is one of the most common psychiatric disorders in childhood and adolescence and if untreated can last into adulthood. Studies have shown that the presence of ADHD causes great academic, social, professional and quality of life commitment in the patients. Although some studies have shown that the quality of life of the ADHD patients primary caregiver also is committed, although no study has investigated the associations between quality of life scores of patients and their primary caregivers, taking into consideration their clinical and sociodemographic characteristics. Objectives: To address these gaps this study was developed with the objective to investigate the association between quality of life and severity of symptoms in ADHD patients and their primary caregivers, and to investigate the impact of pharmacological treatment after six months in ADHD children?s quality of life and their primary caregivers. Methods: 101 ADHD children and/or adolescents were interviewed in Psychiatry Unit for Children and Adolescents (UPIA) of the Federal University of São Paulo (UNIFESP) and their primary caregivers. There were also interviewed 26 children and / or adolescents without ADHD and their primary caregivers. All answered standardized research questionnaires on symptoms of ADHD; on family environment; psychiatric diagnoses and quality of life at UNIFESP São Paulo. Results: The results showed that ADHD caregivers had worse scores in all four domains of WHOQOL, compared with caregivers of controls and the self domain and school domain of quality of life were statistically worse in patients with ADHD, comparing with controls. There was association between social relations domain of caregivers? QoL and self domain of ADHD children. No significant differences were found after the pharmacological treatment in ADHD caregivers but the friends domain of ADHD children?s QoL showed significant improvement. Conclusion: It was found that caregivers of children with ADHD showed damage in all areas of their QoL compared to caregivers of healthy controls. Younger children with lower IQ, with less severe symptoms of ADHD and fewer comorbidities had better scores on QoL. The main caregivers of children and adolescents with ADHD with higher education, higher socioeconomic level and without any psychiatric disorder had higher QOL scores. After six months of drug treatment, only the friends domain of children?s QoL had significant changes, which reinforces the need for investment in psychoeducation, behavioral and psychosocial interventions for the whole family.